An Ever Present Help on Troubled Days

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Transplant Day Six
November 18, 2019

Today Is a troubled day for me. I need to know God as “my ever present help in time of trouble” on this day of  kidney transplant aftercare that began early this morning. Being in the Mayo Clinic lab by 6:30 is not so gentle a way to treat a person with a huge, painful incision! On the way to Mayo Clinic, bumps and potholes in the road caused sharp pain. Walking the hallways at Mayo Clinic required far more energy than I currently have. I am weak and shaky, struggling with significant pain, and suffering from the side effects of very potent medications.

The medical visits will end around 2:00 pm today. We hoped to be able to rest until the next medical appointments on Wednesday. But the transplant doctors need to repeat my blood tests early tomorrow. They made some significant changes to my medications to try to address some concerns they have about my kidney function, excessive incision pain, blood sugar and fluid retention.

It occurred to me today, that in some ways, all of the inflexible after surgery care and the daunting medication regimen seems as if it is not at all about me; it’s about the kidney! It’s all about the kidney!

I can live with that if I can remember that God cares for me, for every part of me, and of course, for the new kidney. But my hope rests on the grace-giving God who also cares for the whole of me — what’s going on with me physically, emotionally and spiritually.

A comforting hymn text about God’s care has lifted me up into hope at various times in my life. “Day by Day, and with Each Passing Moment” was written by a young Swedish woman, Carolina Sandell Berg. Like the Psalmist, Berg learned early in life to trust in God’s strength to help her overcome times of suffering. She learned that when pain and tragedy strike, God may use that experience to deepen our faith.

When Carolina was 26-years old, she experienced a tragedy which profoundly affected her life. As she and her father crossed a Swedish lake, the ship suddenly lurched, and before her eyes, her father was thrown overboard and drowned. Like the Psalmist who gave us a strong affirmation with these words, “God is my refuge, an ever present help in time of trouble,” Carolina Berg found hope in God day by day. 

Although my present situation is very different from her tragedy, I am learning all over again about how hope and faith work for me. This is my paraphrase of Carolina Sandell Berg’s wonderful hymn:

Day by day and with each passing moment,
Strength I find to meet my trials here;
Trusting in God’s kind and wise bestowment,
I’ve no cause for worry or for fear.

God whose heart is kind beyond all measure
Gives unto each day what She deems best —
Lovingly, it’s part of pain and pleasure,
Mingling toil with peace and rest.

Every day the God of love is near me
With a special mercy for each hour;
All my cares God’s love will bear, and cheer me,
God whose name is Counselor and Power.

The protection of God’s child and treasure
Is a charge that on Herself She laid;
“As thy days, thy strength shall be in measure,”
This the pledge to me She made.

Help me then in every tribulation
So to trust Thy promises, O Lord,
That I lose not faith’s sweet consolation
Offered me within Thy holy Word.

Help me, Lord, when toil and trouble meeting,
Ever take, as from a mother’s hand,
One by one, the days, the moments fleeting,
‘Till I reach the promised land.

On days like this one when I feel weary and weak, when I experience pain and need an extra measure of compassionate care, I know I can look to God who is “my ever present help in time of trouble.” And I know that God, who is both father and mother to me, will walk beside me day by day, every day, through every passing moment.

 

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On another note, please pray for me as I recover from my kidney transplant at Mayo Clinic in Jacksonville, Florida. I am so grateful that you are walking with me on this journey that often felt so frightening and is now a very difficult recovery. Your thoughts and prayers mean so much. Your donations through the Georgia Transplant Foundation have helped us get very close to our goal. The Foundation will match donations dollar for dollar up to $10,000, and you have already helped us raise $9,015. If you are able, please help us get to the $10,000 matched amount. We are almost there. If you can contribute or if you would like to read more of the story of my illness, please visit the Georgia Transplant Foundation’s website at this link:

://client.gatransplant.org/goto/KathyMFindley

“Go Fund Me” page is also set up for contributions to help with the enormous costs related to the transplant, including medications, housing costs for the month we have to stay near the transplant center, uncovered medications and medical equipment, and other unforeseeable costs for my care following the transplant. If you can, please be a part of my transplant journey by making a contribution at this link

https://bit.ly/33KXZOj

Light Pierces Through

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“Light Pierces Through” by artist Lisle Gwynn Garrity; Available at https://sanctifiedart.org/original-art/light-pierces-through

Transplant Day Five
November 17, 2019

Today is not such a good day for me. I am enduring a great deal of discomfort, and what seemed like light for me a week ago has diminished, at least for now. Pain can certainly bring darkness into the soul, and suffering, which is much deeper than physical pain, also assaults the psyche. One can wonder whether or not the light will ever return, whether pain and suffering will subside.

I must admit I am wondering that today, with my faith and hope feeling a bit shaky. Yet, quite often I stumble upon grace-filled truth just when I need it most. Today grace-filled truth seemed to come out of nowhere to teach me a fresh lesson about pain and suffering, light and darkness.

From the Facebook page, “A Sanctified Art” I found this nugget of comforting truth.

Light can travel endlessly through a vacuum. Light waves won’t diminish no matter how far they have to travel. Can you imagine that? Perhaps that’s God’s nature and constant posture — endlessly traveling through time and space just to reach us.

For this day it is such a blessing to know that light pierces through the darkness and that, no matter how far light travels, it does not diminish.

Thanks be to God.

 

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On another note, please pray for me as I recover from my kidney transplant at Mayo Clinic in Jacksonville, Florida. I am so grateful that you are walking with me on this journey that often felt so frightening. Your thoughts and prayers mean so much. If you would like to rea the story of my illness, please visit the Georgia Transplant Foundation’s website at this link:

://client.gatransplant.org/goto/KathyMFindley

“Go Fund Me” page is set up for contributions to help with the enormous costs related to the transplant, including medications, housing costs for the month we have to stay near the transplant center, and other unforeseeable costs for my care following the transplant. If you can, please be a part of my transplant journey by making a contribution at this link

https://bit.ly/33KXZOj

Transplant Day Four

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Transplant Day Four
November 16, 2019

Transplant Day Four was a blur. There are no words to adequately describe the volume of information we had to digest just to know how to protect this new kidney. So with all the education we had to learn, both Fred and I are on overload. The pain continues, and hopefully the healing.

But hovering over all the physical and emotional pain are the prayers of the people — my people — my dear friends and family members who are holding hope up high so I can see it. Their love and their compassionate concern is grace for me.

I have few words of my own today, but this prayer shared by Joanna Harader speaks exactly what I need God to hear from me today.

Holy One,

This day may I know
Your health in my body;
Your enlightenment in my mind;
Your grace in my missteps;
Your patience in my frustrations;
Your inspiration where I am stuck
And your tranquility where I need to slow down and rest.

This day may I
Breathe each breath with gratitude,
See each color with wonder,
Hear the hum of the Divine beneath the noise,
Feel your solid presence with each step I take.
Let me live out of your joy
And within your power.

Amen.


Rev. Joanna Harader serves as pastor of Peace Mennonite Church in Lawrence, KS, and blogs at SpaciousFaith.com.

Transplant Day Two

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Image credit: Starry Night Over the Rhône (detail), Vincent van Gogh, 1888, Musé


November 14, 2019
Kidney Transplant Day Two

What I can say definitively about Day Two of my kidney transplant is that it was infinitely better than Day One! Sometimes a little mayhem comes right on the heels of miracles. So it was with me. The hard days of recovery are not over, but life’s hard days never are.

So here’s my plan, hatched out of a little touch of Day Two despair. 

Today was very rainy today in “sunny Florida.”

Tonight the sky is dark without a star in sight, and I am reminded that physical darkness can so easily twist and turn into something much worse — emotional and spiritual darkness. 

I don’t need to get to that place. I am counting on your prayers to help me remember that stars are still in the sky even on the darkest nights. We simply cannot see them for a time. 

Sarah Williams has written some wonderful words in her book, Twilight Hours: A Legacy of Verse. These two lines have led me through many a dark night.

Though my soul may set in darkness, it will rise in perfect light;
I have loved the stars too fondly to be fearful of the night.

As I lean again into the poem’s message, I’ll remember that Transplant Day Three is just minutes away.

Sacred Mystery

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Around 3:00 am this morning, I was awake and alert, having tossed and turned for hours, wishing for daybreak. I was also fasted and prepared for medical tests. But before I tell you about this day’s fasting, I need to reach back and call up some of my memories of other times. 
While wide awake in bed, I thought about some of the fasting times I have experienced, each a singular blessing making way for sacred space.

Fasting was a part of my early childhood. Being a Greek Orthodox child with a religiously devout Yiayia (grandmother), I learned early in life about fasting. Even though I was only 8-years old, Yiayia adamantly believed I was old enough to memorize prayers from the liturgy and recite them — in Greek. And a part of her plan was designed to prepare me for Holy Communion. I must give her some good-grandmothing credit — she did have a fasting experience for me that was age-appropriate, meaning it was not as long a fasting time as the adults observed and certainly not as stringent. No meat, of course, but some laxity on dairy and liquids because I was always an orange juice child that needed to drink a lot. 

Yiayia accommodated my need for plenty of juice and chocolate milk. Still, I thought I might starve before my fast was over and I received the wine and, finally, the little square of communion bread that I scarfed down. I am pretty certain, though, that I did not fully embrace this sacred mystery of prayer, fasting and the sacrament of Holy Communion. 

Years passed and young adult fasting times came in times of deep angst. There were troubled times when the only hope I thought I had came through prayer and fasting. Looking back on that time, I realize that I experienced just a glimpse of the meaning behind a fast. More awareness and appreciation of the sacred mystery would come much later in life. 

Maturity and age created in me a seeking spirit that longed for deep meaning. I remember so vividly my time of fasting for my profession of vows before entering the novitiate of the Order of Ecumenical Franciscans. The occasion happened in the desert of Albuquerque, New Mexico, quite an appropriate setting for my introduction to a contemplative life. Dry, expansive desert and big skies that went on forever captured my imagination. It occurred to me at the time that I was experiencing just a tiny glimmer of desert spirituality. This fast in the desert was really the first time I immersed myself fully in the sacred mystery of fasting. 

Now back to this day while waiting for daybreak after a night of tossing and worrying. This fasting morning was not religious at all, but necessary for information the kidney doctors needed from the 30 vials of blood The Mayo Clinic phlebotomist retrieved from my flimsy vein. 

But come to think of it, today’s fasting may be the most sacred of all because it leads to the mystery and science of a kidney transplant. When a donor comes forward willing to give a gift of life from his or her own body, that feels very much like sacred mystery. 

God orchestrated the entire experience. And by the way, God knows all about my tossing and turning in the wee hours of this morning. God understands my anxiety and fear. God understands the emotional place of anticipating a kidney transplant after five years of waiting.

I have always loved the imagery of this scripture verse written by the Psalmist. Today seems like a good day to ponder it.

You have kept count of my tossings;
put my tears in your bottle.
Are they not in your record?

— Psalm 56:8 (NRSV)

Tomorrow is the day. If all goes well, tomorrow I will get a new kidney. If for some medical reason, the transplant does not happen, I still know and understand the sacred mystery that God keeps count of my tossings and saves my tears in a bottle. And that’s enough for me.

 

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On another note, please pray for me as I look toward my kidney transplant tomorrow at Mayo Clinic in Jacksonville, Florida. I am so grateful that you are walking with me on this journey that often felt so frightening. Your thoughts and prayers mean so much. If you would like to rea the story of my illness, please visit the Georgia Transplant Foundation’s website at this link:

://client.gatransplant.org/goto/KathyMFindley

“Go Fund Me” page is set up for contributions to help with the enormous costs related to the transplant, including medications, housing costs for the month we have to stay near the transplant center, and other unforeseeable costs for my care following the transplant. If you can, please be a part of my transplant journey by making a contribution at this link

https://bit.ly/33KXZOj

 

On Beauty and Terror

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Photo by Steven Nawojczyk.

Life is all about beauty and terror, each descending on us at will and rearranging everything. I think of the wise words of Frederick Buechner:

Here is the world. Beautiful and terrible things will happen. Don’t be afraid.

The constant picture in my mind is a rough, rocky path with unknown crooks and turns,  and the destination unseen. That image of life’s journey is enough to cause anyone fear, and though the path has its own beauty, it also holds the terror of unexpected twists on a rocky way.

For quite a long time, I have been facing a time of beauty and terror in the guise of my upcoming kidney transplant. How beautiful it is to know that a kidney donor is willingly offering a kidney to a stranger. At the same time, I nurse a small feeling of terror at times about the outcome of the surgery. Will I have pain? Will I recover quickly? Will the kidney work? Will I tolerate my lifelong immunosuppressant medications? Will the transplant really happen?

“Don’t be afraid” is indeed the strongest and best word of encouragement. It is quite wonderful when we reach a point in life — if ever we do — where fear is no longer our constant companion. The way to get there, I think, has everything to do with two things: enjoying a close relationship with God (something that is not always easy to accomplish); and being a part of a genuine, caring community. Being close to God and being encouraged by your community keeps fear at bay so that the beautiful part of living can emerge.

Richard Rohr would say that our “work” is to know God’s desire for us to live into the fullness of our humanity and our identity. In other words, recognize that our humanity is certainly open to fear, but be vigilant about claiming our identity as God’s own children. Because it is that identity, that holy relationship with God, that brings us the beautiful part of life.

Richard Rohr shares the words of one of his favorite poets, Rainer Maria Rilke:

God speaks to each of us as he makes us,
then walks with us silently out of the night.
These are the words we dimly hear:
You, sent out beyond your recall,
go to the limits of your longing.
Embody me.
Flare up like flame
and make big shadows I can move in.
Let everything happen to you: beauty and terror.
Just keep going. No feeling is final.
Don’t let yourself lose me.
Nearby is the country they call life.
You will know it by its seriousness.
Give me your hand.

“Let everything happen to you: beauty and terror,” the poet writes. This is surely the poetry of life: to admonish us to let it all happen, all the beauty, all the terror. Because God uses all of it, together, to create in me the person I am meant to be.

So the end of the story is this: I will get a transplant and I will let it all happen — all of it — so that the beauty and the terror can renew my life and embolden my spirit.

 

 

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On another note, please pray for me as I look toward my kidney transplant on November 15th. I am grateful that you are walking with me on this journey that often felt so frightening. Your thoughts and prayers mean so much. If you would like to read the story of my illness, please visit the Georgia Transplant Foundation’s website at this link:

://client.gatransplant.org/goto/KathyMFindley

“Go Fund Me” page is set up for contribution to help with the enormous costs related to the transplant, including medications, housing costs for the month we have to stay near the transplant center, and other unforeseeable costs for my care following the transplant. If you can, please be a part of my transplant journey by making a contribution at this link:

https://bit.ly/33KXZOj

 

 

 

Numb!

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Numb! It’s not a very emotive feeling like other emotions. It seems so much more appropriate to feel ecstatic, elated, overjoyed — or even terrified — at receiving the call from Mayo Clinic saying a kidney is available and the transplant is scheduled for November 15th. But numb is all I can get to right now. After all, this is a very tangible way of announcing an end to five years of illness, uncertainty and dialysis. Five years does not seem like such a long time, but it feels in some ways like a lifetime.

So in the immortal words of Pink Floyd, “I have become comfortably numb.” It’s not such a bad way to feel. The journey has been a long one, an emotional one, and now I think it’s time for calm. Numb is actually pretty darn calm, and after traveling this wild and fantastic journey, numb is okay. There’s something about numb that feels like serenity.

So many people have walked alongside me on this journey and, at times, carried me when I could barely take the next step. No one — and I really mean no one — could have been as dedicated and loving a caregiver as Fred. He is forever faithful as he has always been. 

And oh, my friends, my friends nearby and far away from many lives past to this very day! Thinking of them just now and knowing how faithfully and deeply they have prayed for me brings tears to my eyes. I am grateful for extended family who cared for me and Fred enough to urge us to Georgia. They have supported us in so many ways.

No person could have had a more dedicated and caring staff of dialysis professionals as I have had. They have missed nothing, not a change in a blood test, not the signs of an infection, nothing! And they are the ones who have kept me healthy enough to get to today.

My friend who is donating a kidney on my behalf is living a life of selflessness, giving a very precious gift of immeasurable value. I think of him today with such unfettered gratitude.

God’s grace and protection have been near, so near at times that I felt a palpable sense of the holy — within me, surrounding me, above me and below me, behind and before me guiding me on the unknown path.

As I said at the very beginning, I am numb, and although numb is acceptable and appropriate right now, numb is not such a good crucible for words. So I have no more words right now. Except this good word:

I thank my God every time I remember you, constantly praying with joy in every one of my prayers for all of you . . .

— Philippians 1:3-4 (NRSV)


For all that has been — Thanks.        
For all that shall be —Yes!

― Dag Hammarskjöld

“Me!”

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When I was younger, my primary life goal was to make people like me. It was something of an obsession, and it caused great harm to my spirit. For you see, I thought I had to be everyone else’s image of me. So “me” became changeable and malleable in the hands of a variety of other people. In my mind, they just had to like me.

The conundrum of life: how to accept that not everyone will like me. Maybe even most people won’t like me. So here’s the sad, but inevitable result: “me” became someone I didn’t even know. I lost myself in the impossible quest to be accepted and liked.

Then came the metamorphosis. It happened around age 47. I think what started it may have been reading the book by Sue Monk Kidd, The Dance of the Dissident Daughter.

My sisters in cyberspace, you should read that book. The thing that nearly frightened me enough to make me put the book away is the descriptor after the main title. So here’s the title of the book, in all of its feminist fullness: The Dance of the Dissident Daughter: A Woman’s Journey from Christian Tradition to the Sacred Feminine.

Well, when I read part of the book’s description — the “journey from the Christian tradition” part — it scared me to death! I had no intention at all to journey away from my Christian tradition.

I read the book anyway, and it changed my life and launched me into a journey I could never have envisioned. Sue Monk Kidd led me on an incredible, circuitous journey through fear, anger, healing, and eventually, awakening and transformation. Of course, I could never see myself turning away from my deep connection to what Kidd described as “the deep song of Christianity,” But I did discard the voices that kept me in my place, and kept me quiet, for so many years of my life.

When those discouraging, disparaging voices were silenced, I heard my own voice, finally. With clarity, my voice declared “me,” exactly the woman I was meant to be, precisely the woman God was calling to ministry. By embracing my full humanity and my spirituality — that looked very different than my religiosity had looked — I found myself.

“Me” was awakened, out in the open, in the middle of God’s world and smack dab in the center of God’s will. Oh my! Now no one would like me! When my words spoke Gospel truth, people didn’t like me. When I tenaciously followed God’s call to ordination, people didn’t like me. When I dared to preach (from a real pulpit) lots of people didn’t like me. When I worked as an advocate for women and children harmed by violence … well, no one at all liked me then because I refused to back down.

I like this quote from Denzel Washington:

“Some people will never like you because your spirit irritates their demons.”

There it is! The real, unadulterated truth! So as my spirit continued to irritate everyone’s demons, I was finally living my life as “me!” And that, my sisters, was a good place to be.

I hope you are in your own “good place.”

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On another note, please pray for me as I await a life-saving kidney transplant. I am grateful that you are walking with me on this journey that often feels frightening. Your thoughts and prayers mean so much. If you would like to read the story of my illness at the Georgia Transplant Foundation’s website, please visit this link:

http://client.gatransplant.org/goto/KathyMFindley

A Go Fund Me page is set up for contributions to help with the enormous costs related to the transplant, including medications, housing costs near the transplant center, and other unforeseeable costs for my care following the transplant. If you can, please make a contribution at this link: 

https://bit.ly/33KXZOj

What If?

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Sometimes blogs express grief or anger, indignation or angst, fear or struggle. But today, this blog, must express joy, relief, hope and gratitude. If you saw my last post about my week-long medical evaluation at Mayo Clinic in Jacksonville, Florida, you know that my hope was that I would be approved for a kidney transplant.

Today, I received the phone call from Mayo letting me know that I am now on the transplant list and ready for a kidney. It was a phone call that rekindled my hope. It brought instant joy and a sense of relief. And then there’s gratitude, that the God who holds the universe holds me, too. 

Through the fear and struggle of 2014, through these five years of daily dialysis, God has held me in arms of love and care. I do not know if fear and struggle are over. Transplant surgery is an ominous thought at times. Strong, immunosuppressant medication for life is an ominous thought at times. My body rejecting the kidney is an ominous thought. There are dozens of “what ifs!” But I try to always look at “what ifs” through this empowering lens:

There is freedom waiting for you,
On the breezes of the sky,

And you ask 
“What if I fall?”
Oh, but my darling,
What if you fly?

― Erin Hanson

What if I fly? What if I take the “wings of the morning?” What if I soar? What if the Spirit Wind blows across my life?

What if?

 

 

 

 

A Life Milestone

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I’m pretty sure it’s not cool to get emotional about having a medical evaluation. But I did. I passed a life milestone yesterday when I completed my week long medical evaluation at Mayo Clinic in Jacksonville, Florida. Getting to an actual kidney transplant is a long journey, five years, ten years, people wait even longer.

I arrived exhausted and holding on to a fair amount of cynicism, barely able to believe that I might actually get a kidney transplant some day. As is my custom, I have trusted God along the way for the best outcome for me, most of the time. But five years of dialysis — every single day for eight hours a day — can wear down one’s hope. Five years of waiting on a transplant list with thousands of other waiters can test one’s faith. 

About a month ago, I had a very bad experience with my first transplant center. It took me to a very low place of feeling that I had been devalued by the caregivers who had known me for almost four years. I was on the transplant list, but there was virtually no communication with me during those years. And just as we were about to turn a corner with a transplant actually in view, they abruptly took me off of the active transplant list. It became very clear that the process with this particular transplant center would probably not lead to a transplant for me anytime soon. I was emotionally devastated, but more importantly, I no longer felt comfortable placing my life in their hands. So I gathered up all my emotional baggage and took it with me to Mayo Clinic. I did not expect what happened to me there. 

We turned in to the Mayo campus on a road framed with lush, spreading trees. Palm trees were interspersed among the large trees and plants covered the ground. The landscape was made even more beautiful by a large pond with a fountain sending water into the air. It reminded me of the Living Water that quenches our thirst forever. I looked up and saw the words, “Mayo Clinic” and suddenly felt a sense of being home, of being in a place with people who would care for me. A silent tear slid down my face and I felt very full, the lump in my throat extending into my chest.

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The week was full of appointments and medical tests, beginning with the transplant nephrologist, Dr. Mai, who is one of the most compassionate and personable physicians I have ever met. He took a complete history, examined me thoroughly and answered ever question we had. 

 

I must say that every single employee at Mayo Clinic was professional, pleasant and kind. It was an atmosphere of caring and compassion. It was a busy place that never felt rushed. They pulled off a “medical miracle” of a sorts, scheduling about thirty appointments for me and never being off schedule for even one of them. 0DDE1816-F2F2-491F-9AFA-ADD27234EEA7

There are places throughout the buildings to stop and rest, many of them filled with the sounds of soothing classical music. It is a place that values art, which you will find in every nook and cranny. And then there is the atrium for meditation, a space closed off from the rest of the clinic. When you enter, a large flowing fountain makes the only sound you will hear. In that silent place, the lighting is dimmed and there are comfortable places to sit. A beautiful altar-like table draws your focus.

After the full week of tests, scans, blood draws and consultations, we were back with Dr. Mai who patiently explained every test result. He was encouraging about the kidney transplant and said more than once that I needed a transplant as soon as possible. “But what do I know?” he said. “I’m just a regular doctor. The surgeon is the one who will tell us if a transplant is possible.”E9B0C9D8-E46A-40EA-A66E-B0117A8E3D14

Then we moved to our very last appointment with the transplant surgeon, the one who would hold my fate in her hands. I feared this last appointment and worried about it throughout the week. The surgeon would have the last word. 

How delighted we were to meet Dr. Perry, a rather young woman who obviously knew her craft. She looked over all the scans and examined the potential site of the incision. After a lengthy Q & A, she sent us on our way. She had the final word, the last words of the week. “Let’s get you a kidney!” she said enthusiastically, and all the hope I thought I had lost rose up inside me. AE0AB32B-2F0E-4485-9F88-D2EC33057A80

When we drove away, I felt incredibly sad to be leaving that caring place. The lump in my throat came back and I was filled with gratitude, confident that God had chosen Mayo Clinic to help me take back my life.34233289-31E0-49AE-9D02-0D6B98DC5AD7