How often we find ourselves wandering in what feels like wilderness. We wander, and then wander some more, in barren places — in parched, dusty and dry deserts of the soul. We wander in aimless travel that moves us from one nowhere to another. The truth is that we have been nowhere and we’re going nowhere.
It’s a long, hard way, this wilderness wandering. I have found myself there at times. You probably know the desert, too. Like the people of Israel, we don’t much like wilderness wanderings. Remember their laments and complaints?
The Israelites looked up, and there were the Egyptians, marching after them. They were terrified and cried out to the Lord. They said to Moses, “Was it because there were no graves in Egypt that you brought us to the desert to die? What have you done to us by bringing us out of Egypt? Didn’t we say to you in Egypt, ‘Leave us alone; let us serve the Egyptians’? It would have been better for us to serve the Egyptians than to die in the desert!” Exodus 14:10-12 (NIV)
Other Biblical passages speak more favorably about walking in a desert wilderness and about finding there comfort and hope. One of my favorite passages is rather obscure, so I want to share it with you.
The Lord said, “Therefore, I will now persuade Israel, and bring her into the wilderness, and speak tenderly to her. From there I will give her her vineyards, and make the Valley of Achor a door of hope. Hosea 2:14-23 (NRSV)
Finding ourselves wandering in a parched and barren desert can cause us to feel, not only exhaustion, but also exclusion. How bewildering it is when we are excluded, left alone to wander and feeling that no one is near, no one hears our laments, no one cares. My hope for you this day is that, whenever you have to wander in the wilderness, you will find on your way a friend beside you and at the end of your path, a door of hope.
I leave you with these words, a benediction spoken by a dear friend.
We did not ask to be in this liminal space — this liminal time in our lives — but we are in the murky middle of it — a liminal space.
We’re in the liminal space between Covid isolation and our former, normal lives. We’re in the liminal space between the policies and tone of our current president and the hope and change of a starting fresh toward a new direction. We’re in the liminal space between racial protests against injustice and a new day of justice for all persons.
Yet, right now many of us are in a space of discontent. Like me, you may be isolated in a space of safe distancing because of a seemingly endless pandemic. You may miss your grandchildren, your family, your friends and your community of faith. You may be in one of the high risk Covid categories, not daring to go out of your house. I am there, and if that is where you are, I’m there with you feeling all the emotions you might be feeling.
In addition to discontent, we find ourselves in a space we might call discouragement as we look around us and continue to see racial injustice, signs of misogyny and the disparagement of women, evil acts of white supremacy, immigrant children separated from their parents and disrespectful rhetoric from government employees who actually work for us!
As for me, I feel as if my soul is in chaos. I feel heaviness, loss, worry, even despair once-in-a-while. All of us, in these pandemic days, are most assuredly right in the middle of liminal space, a space that is not a comfort zone for any of us. So what do we do when we’re stuck in a space that is so disturbingly out of our comfort zone? The easy answer is: to know in your very soul that liminal space is always a temporary in-between space, a threshold to something ahead, a life “time out.” A more down-to-earth answer is: we languish or we transform. We languish, struggling and sparring with everything that keeps us from finding a way out, OR we stay calmly and contentedly in this cocoon-like space and wait patiently until our “wings” begin to emerge, spread out into the light and begin to flutter away to some delightful space. At that point transformation occurs, a transformed “me” and a transformed space I now occupy.
Liminal space is an inner state and sometimes an outer situation where we can begin to think and act in new ways. It is where we are betwixt and between, having left one room or stage of life but not yet entered the next. We usually enter liminal space when our former way of being is challenged or changed—perhaps when we lose a job or a loved one, during illness, at the birth of a child, or a major relocation. It is a graced time, but often does not feel “graced” in any way. In such space, we are not certain or in control. This global pandemic we now face is an example of an immense, collective liminal space.
Is it possible that instead of despairing in the space we are in at this moment in time, perhaps we can consider it just an in-between space and look ahead with hope for something new, better, brighter. Again I turn, as I often do, to author and theologian Richard Rohr who writes that liminal spaces should be introspective places rather than unsettling places. To him, “liminal” is a word meaning “threshold between one stage of life to another.” It is only within these liminal spaces that “genuine newness and the bigger world is revealed.”
The twentieth-century sociologist Joseph Campbell believed that the world was made up of sacred spaces and profane spaces in our lives. Profane spaces are places that we have to go, like our jobs, school, the grocery store or the post office. In contrast, sacred spaces are places where transformation takes place; where we encounter the world and each other to come to a deeper understanding of ourselves, and a world bigger than ourselves.
If you are in this space of betwixt and between, floating uncomfortably in this liminal space, trust that you will not stay here forever. Place your hope in the God of transformation and believe that you will see a transformation — of this current state of life, and of you!
Chaotic spaces in our lives ask us to enter into peace at a time when peace seems so impossible. Chaos urges us to seek out meditative moments of quietness, to open up our souls to God’s embrace and to let our hearts release the pain. I invite you to spend a few quiet moments listening to the music and the text of a reassuring choral anthem entitled God Gives the Song. (Text: Susan Bentall Boersma Music: Craig Courtney)
When words are lost among the tears,
When sadness steals another day,
God hears our cries and turns our sighs into a song.
Sing to the One who mends our broken hearts with music.
Sing to the One who fills our empty hearts with love.
Sing to the One who gives us light to step into the darkest night.
Sing to the God who turns our sighs into a song.
I watched the news last night before bed. Not such a good idea! Halfway into the broadcast, I felt a pervasive sense of despair and became very nauseous. I’m feeling it again as I’m writing this. It was the very real and very current events that were so upsetting: hurricanes bringing destruction in Louisiana; California wildfires threatening yet again; protests after the tragic and unwarranted shooting of Jacob Blake; 17-year old Kyle Rittenhouse, who took to the streets of Kenosha, Wisconsin during protests, using a military-style rifle to kill two people; a president who is intent on meeting street protests with military violence; a president who gathers a crowd of supporters, not socially distanced and most not wearing masks; and the coronavirus hovering over it all to make situations even more devastating than they already are.
I turned off my bedside lamp and, in the darkness, pondered the news I had just seen. I could not sleep with the sorry, worry, desperation and helplessness I felt. There was not one thing I could do to change my world. My world seemed out of my control, engulfed in all of the events of our time. I wondered . . . how will we live with natural disasters, protests in the streets, killing, violence, military style weapons, police out of control, political rancor, a deadly pandemic and a seeming disregard for human life? How will I live with it? What can I do to change it? In these times, we see before our eyes people getting very sick, people dying alone in nursing homes and hospitals because of COVID restrictions, people isolated and lonely for months, people divided by political polarization, people being killed by police, people protesting for racial justice, people pushing back hard, enshrined in their white supremacy, people losing their homes, people fighting out-of-control wildfires, people losing their jobs, people tired from working with so many hospital patients, people afraid to go back to school, people feeling angry and frustrated, people feeling complete despair. Most of all, people are hoping beyond hope for better days ahead.
My mind thought of nothing of any consequence I could personally do to reverse all of this destruction and despair. My heart memory, though, remembered some things God instructed us to do long ago. God addressed instruction to, “my people who are called by my name.”
“I am called by God’s name,” I thought. “I know exactly what to do!” Of course, I could honor God by standing up for justice — engaging in political activism, contacting government officials to demand change or participating in peaceful protests. I could honor God’s creation by doing more to care for the earth. I could honor God by loving my neighbor and caring for those who have suffered loss.
People of faith have God’s marching orders that dispatch those called by God’s name to practice all manner of good works. And this we must do. But the critical admonition from God that my heart recalled last night is found in Second Chronicles 7:14. If you are called by God’s name, you will likely know these words well.
If my people who are called by my name humble themselves, pray, seek my face, and turn from their wicked ways, then I will hear from heaven, and will forgive their sin and heal their land. (NRSV)
But wait, Second Chronicles 7:14 doesn’t apply to us. It was for Israel. Our Biblical interpretations must have a solid contextual underpinning. Right?
Of course, many Scriptures taken out of context have done great damage. The context of Second Chronicles is that when God brings judgment on God’s own people, Israel, as a result of their sins, that God would also heal their land. And God would re-establish their blessings when they would pray and “turn from their wicked ways.”
We may look around at all the destruction around us and say, “My sin did not cause any of this.” I don’t have military weapons. I didn’t shoot anyone. I don’t set wildfires, I always wear my mask in public. I certainly cannot stop the ominous storm surge of a hurricane.
True enough! Most of us didn’t sin by doing any of these things. Yet, we should remember two things: 1) While we did not commit those particular sins, we do not fully know the harm inflicted by other sins we may have committed; and 2) We cannot begin to know the transformative power of our sincere, repentant, intercessory prayer.
Instead of entertaining such deep and helpless despair, instead of feeling physically nauseous with worry, I think I will follow the admonition of the Chronicler who gave me God’s call to pray. Of course, the admonition in its historical context truly was for Israel, but if we intend to use the Holy Scripture to guide our lives, we cannot ignore a passage that begins with “If my people.”
Perhaps my prayers and yours will bring transformation, in our spirits and in our world.
liminal in American English (ˈlɪmɪnəl ; ˈlaɪmɪnəl )
1. Relating to a transitional or initial stage of a process.
2. At a boundary or transitional point between two conditions, stages in a process, ways of life, etc.
“Liminal” used in a sentence:We are in a transitional and liminal time: this makes everything unsettled and awkward, and most of us feel tremendous unrest and a sense of urgency.
I choose to mark this particular time in history as a liminal time that demands my courage to stand — to stand in solidarity with every person who is demanding an end to racial injustice. I cannot choose my partners in this struggle. Instead, I have to accept those that appear in my life, bringing with them a determined will to stand for justice.
I must understand that liminal time does not last forever. Liminal time is a place of transition, a liminal stage between justice and oppression, between life and death. So my choices and yours in this liminal time might very well affect what’s going on in the streets of American cities, in police precincts in every community and rural hamlet, in the halls of Congress and in the White House, in our hearts and in the hearts of those we could see as our “enemies.“
Here is where I must focus. My heart must long for an end to injustice. So must yours, because God’s heart grieves over the mayhem in our streets and the violence that has its way when a white police officer murders a black man or woman, even a black child.
You and I must yearn for an end to racial injustice — any kind of injustice and oppression — because God’s heart yearns to see us living in holy unity as brothers and sisters.
These days have dramatically shown us our liminal time, and it is NOW.
I have a strong sense that this liminal time has brought the widespread unrest we are witnessing, and that unrest emerges directly from a deep desire for change and transformation. It must be now!
Those of us who remember, know that the Civil Rights Movement came to its boiling point when every marcher, every protester, every non-violent activist and every violent one knew when their liminal time had come. Some people, of course, did not like that time at all, but even those who resisted that movement towards justice knew in their hearts that it was the liminal time, the time of NOW.
The fight was fought by people who spoke and marched, prayed and worshipped, who resisted and stood their ground, who preached and sang their freedom songs. Ah, how those songs of the civil rights movement helped motivate people of all ages and races, from Student Nonviolent Coordinating Committee (SNCC) activists and Freedom Riders to the thousands who marched on Washington, Selma, and Montgomery!
Yet not one person — Civil Rights leader or non-violent protester — could achieve civil rights alone. It required persons living in the poorest neighborhoods and their affluent neighbors across town. It took white folk and black folk, protestors and preachers, eloquent advocates and those who fought silently, lawyers and congresspeople and attorneys general and presidents. It required a community in solidarity. In fact, during the Civil Rights Movement, the creation of community was the quintessential coming-of-age story for Black people.
Of that historically significant time, Father Richard Rohr writes this:
It was the particular time in history when nonviolent initiatives seeded with contemplative worship practices became acts of public theology and activism. You see, activism and contemplation are not functional opposites. Rather, contemplation is the heart’s reflective activity that is always seeking the spiritual balance between individual piety and communal justice-seeking.
Who could have predicted that America’s apartheid would fall as decisively as the walls of Jericho, when the people marched around the bastions of power carrying little more than their faith and resolve? How audacious it was to take just the remnants of a chattel community, the vague memories of mother Africa, and a desperate need to be free, and translate those wisps into a liberating vision of community. The idea of a beloved community emerged from the deeply contemplative activities of a besieged people — the people of the Civil Rights movement. — Fr. Richard Rohr
One would think that such a movement that was so powerful, so eloquent and so determined would see its dream become reality, and that such a stunning reality would last forever. So that every person, from that time to this, would live as beneficiaries of beloved community. But here we are in another liminal space of racial indignity, cities in chaos and families mourning the death of their loved ones in Minnesota, in Georgia, in Kentucky and beyond. We did not really believe we would be in this time and space, a time that would demand a civil rights movement of its own.
The in-between liminal spaces of Scripture are pregnant with God’s transformational possibilities:
Noah and his family rebuilding the world after the flood; Abraham holding the knife above Isaac; Jacob’s struggle with the angel; Joseph in the pit; Moses and the Israelites at the edge of the Reed Sea; Israel in the wilderness; Joshua crossing the Jordan; Jesus suffering on the tree; the women at His tomb; the disciples waiting in Jerusalem.
Scripture indeed is fraught with liminal moments – moments of imminent expectation, infused with both hope and doubt — that lead to transformation and change. So change involves tension, and those of us who are longing for a paradigm shift that insists on justice, know that tension all too well.
Betwixt and Between — neither here nor there. It would be safe to say that this liminal time is mostly uncomfortable and confusing. Liminal time is the time between what was and what will be. And not one of us can predict what will be, either in this struggle against injustice or in the uncertain waxing and waning of the deadly coronavirus. The convergence of virus and death and sickness and distancing with racial injustice, violence and protest is almost too much uncertainty for us to navigate.
In the end, I want to believe that this liminal time and every liminal space is the dwelling place of God, the place where God meets us and says, “I will never leave you or forsake you . . . And remember, the Spirit of the Lord is upon you and has anointed you to announce Good News to the poor, to proclaim freedom for the imprisoned and renewed sight for the blind, to release those who have been oppressed. [my paraphrase]
Even in our current time of disconcerting fluid borders, God is with us in this liminal time. God is inseparably bound with us in this moment, and it is in this liminal space where heaven and earth, life and death, joy and sorrow, ecstasy and despair, sleeping and waking, justice and injustice, commingle.
So here’s my challenge to myself and to all of us. What if we choose to experience this liminal time, this uncomfortable now, as a time for insisting upon full solidarity with all of our brothers and sisters? What if we choose to make this particular time — with all of its pandemic and death, chaos and destruction, fire and protest, upheaval and violence as if no lives matter — a liminal time for construction and deconstruction, choice and transformation? What if you and I choose to hold hands and march on in solidarity and community until we reach the mountaintop where injustice is no more?
This morning I have no words. I have tears. I have sadness. I even have some anger that the people I love whose skin is not “white” are living in grief and frustration. I say only that injustice and oppression cling so close to my friends, today and in centuries past.
I hear my dear friends cry out for justice. I hear them using words to make sense of it all, and I hear their voices fall silent. Silent, with just these words, “I’m tired.” A dear friend posted the words on the left this morning. I want to see her face to face. I want to be together. I want to comfort her, hoping beyond hope that it is not too late for comfort.
I read this horrific headline this morning.
Prosecutors in Hennepin County, Minnesota, say evidence shows Chauvin had his knee on Floyd’s neck for a total of 8 minutes and 46 seconds, including two minutes and 53 seconds of which Floyd was non-responsive. — ABC News
Today I find myself deeply in mourning for the violence that happens in our country. I find myself trying to share in the grief of my friend and knowing I cannot fully feel the depth of it. Today I find myself unable to emotionally move away from it all. Today I contemplate George Floyd’s cry, “I can’t breathe.”
If there is any comfort at all, it comes as a gift of the artists pictured here. In an act of caring, they offer this mural at a memorial for George Floyd.
The names of other victims of violence are painted in the background. The words, “I can’t breathe!” will remain in our memories. Today we are together in mourning.
But tomorrow, I will celebrate Pentecost. I wonder how to celebrate in a time when lamentation feels more appropriate. I wonder how to celebrate when brothers and sisters have died violent deaths and when thousands of protesters line the streets of many U.S. cities. I wonder how to celebrate when protesters are obviously exposing themselves to COVID19.
Still, tomorrow — even in such a time as this — I will celebrate the breath of the Spirit. Tomorrow I will join the celebration that has something to do with being together, being one. To juxtapose the joyous celebration of Pentecost with the horrible picture of what we saw in cities throughout our country for the past few nights seems an impossible undertaking. What does one have to do with the other?
Perhaps they do share a common message. From those who protest, this message:
“We bring our broken hearts and our anger for the killing of our people, for the murders across the ages of people who are not like you. You treat us differently than you treat the people who look like you. For as long as we can remember, you have visited upon us oppression, slavery, racist violence, injustice. And we are tired. We are spent. We are beside ourselves with collective mourning. We can’t breathe!“
From those who celebrate Pentecost, this message:
“How we celebrate the day when the Holy Spirit breathed upon those gathered together, with gifts of wind and fire!
How we celebrate the story told in the 2nd chapter of Acts!”
When the day of Pentecost came, they were all together in one place.Suddenly a sound like the blowing of a violent wind came from heaven and filled the whole house where they were sitting.
They saw what seemed to be tongues of fire that separated and came to rest on each of them.All of them were filled with the Holy Spirit and began to speak in other tongues as the Spirit enabled them.
Now there were staying in Jerusalem God-fearing Jews from every nation under heaven.When they heard this sound, a crowd came together in bewilderment, because each one heard their own language being spoken.Utterly amazed, they asked: “Aren’t all these who are speaking Galileans?Then how is it that each of us hears them in our native language? Parthians, Medes and Elamites; residents of Mesopotamia, Judea and Cappadocia, Pontus and Asia, Phrygia and Pamphylia, Egypt and the parts of Libya near Cyrene; visitors from Rome(both Jews and converts to Judaism); Cretans and Arabs—we hear them declaring the wonders of God in our own tongues!”Amazed and perplexed, they asked one another, “What does this mean?”
Some, however, made fun of them and said, “They have had too much wine.”
Then Peter stood up with the Eleven, raised his voice and addressed the crowd: “Fellow Jews and all of you who live in Jerusalem, let me explain this to you; listen carefully to what I say.These people are not drunk, as you suppose. It’s only nine in the morning!No, this is what was spoken by the prophet Joel:
“‘In the last days, God says,
I will pour out my Spirit on all people.
Your sons and your daughters will prophesy, last days, God says,
your young men will see visions,
your old men will dream dreams.
Even on my servants, both men and women,
I will pour out my Spirit in those days,
and they will prophesy.’” — Acts 2:1-18 NIV
The people did not, in fact, have too much wine. Peter made it clear that wine did not empower the people who gathered in Jerusalem — “every people under heaven” — to speak and understand as they heard every word spoken in their own language. That would be a start, would it not, if we could speak the same language and truly understand — people who have flesh-colored skin, and brown and bronze, and red and black . . . every skin color under the sun. If only we could understand each other.
And then, what if we could gather together, welcoming every person? What if we could truly gather together and wait for Spirit to fall upon us with empowerment like we have never known before? What if we allowed the Spirit to give us breath, together?
In the end, there is a tiny bit of joy in George Floyd’s tragic story. It is a joy much deeper than reality’s sorrow. The artists completed their mural, and in the very center near the bottom, they had painted words that express the greatest truth of all.
Can you see it behind the little girl? “I can breathe now!”
What if we welcome Spirit Breath that will change us? What if we embrace empowerment from the Holy Spirit to help us change our world? What if we end oppression and injustice, together? What if holy perseverance could inspire us to live and act in solidarity with our sisters and brothers, all of them?
What if we dare to give our soul’s very breath to help bring about Beloved Community, together?
May my God — and the God of every other person — make it so. Amen.
The sages of the world came up with this wise saying: “It’s not over ‘till it’s over!” There are some similar sayings around, most notably one about the singing of a “fat lady.” But that one is not at all kind or sensitive! The point is that in life some things are never over. Grief at losing a loved one comes to mind, as does living with an incurable illness, losing a cherished relationship or any number of persisting, chronic, never-ending difficulties.
But the truth is, we are a resilient people, created by God who fully equips us for life’s calamities. We do not shrink in the face of loss. We know that weeping can last through a dark night, but the morning light may bring joy. We do not fear life’s dark times, because we know that our story is not over. There will be brighter days ahead. The brightest stars will give light in the darkest nights. Our resilient spirits will lift us up and, most importantly, God will be near right in the midst of our sufferings. It is not over! I am inspired by the thoughts of Ann Weems about this very thing:
IT IS NOT OVER
It is not over,
There are always newer skies
God can throw stars.
When we begin to think
that we can predict the Advent of God,
that we can box the Christ
in a stable in Bethlehem,
that’s just the time
that God will be born
in a place we can’t imagine and won’t believe.
Those who wait for God
watch with their hearts and not their eyes,
for angel words.
— Ann Weems
What profound truth: that those who wait for God watch “with their hearts and not their eyes,” listening — always listening — for angel words. We can find another take on that spoken by the Prophet Isaiah:
Those who wait upon the Lord will renew their strength. They will mount up with wings as eagles. They will run and not grow weary. They will walk and not faint.
— Isaiah 40:31
When I think that I have reached the end of my resilience, when I have become weary with my life’s tragedies and believe that it’s over, I want to be able to remember the words Ann Weems wrote, that “it is not over, this birthing, and that there are always newer skies into which God can throw stars.”
Like you, I need newer skies now and then. And if God can throw stars into those new skies, all the better. Advent’s promise is that those stars of hope will appear just when I most need them.
May God make it so, and may we remember stars of hope and angel words whenever we celebrate the Christ Child born under the light of Bethlehem’s star. Amen.
The Second Day of Advent Transplant Day Twenty-One December 2, 2019
THE CHRISTMAS SPIRIT
The Christmas spirit
is that hope
which tenaciously clings
to the hearts of the faithful
in the face of any Herod the world can produce
and all the inn doors slammed in our faces
and all the dark nights of our souls
that with God
all things still are possible,
that even now
a Child is born!
What could this beautiful poem titled The Christmas Spirit possibly have to do with my recent kidney transplant? At first glance, not much. But lingering on the poet’s words made some of them leap from the page for me. I have to admit that the words most piercing to me are these: “. . . all the dark nights of our souls.”
Guilt overwhelmed me after the transplant was complete. I was back in my room six hours after the surgery — barely awake, a little confused, exhausted, in pain and, they tell me, very quick-tempered. I yelled at my husband, something I may have done twice in 50 years of marriage. The truth is I was feeling covered with a blanket of guilt. The nurses, my surgeon, my family were all celebrating the transplant miracle. I was in pain, second-guessing my decision to even have the transplant in the first place and feeling guilty for not acknowledging the miracle everyone else saw.
For the next two days, every person on my transplant team who came to see me entered my room with a large smile and expressed one word, “Congratulations!” said with joy in a most celebratory voice. All the while, I was often weeping pain’s quiet tears. I stared at each congratulating person with a little bit of concealed contempt. In my mind, if not on my lips, was a response that went something like this: “Congratulations? Do you have any idea what kind of pain I am experienced right now? And have you had this surgery yourself? Save your congratulations for another day!”
The physical pain was very real and very intense. The soul pain hurt even deeper. Body and soul — the physical, spiritual and emotional — were so intricately fused together that it was all but impossible to isolate or separate them. Is this just physical pain? Is part of it emotional pain? Am I experiencing, heaven forbid, a spiritual crisis? I found no way to tell. For me, it was pain in all three parts of me and that made it almost intolerable.
For two nights, I did not sleep at all — awake all night, feeling alone, abandoned and in a wrestling match with my pain. As I went over and over in my mind all the reasons I had for getting a transplant, my thoughts morphed into a fairly clear “What have I done?”
It felt so much like a dark night of the soul as I grieved my aloneness and isolation, mourned the loss of my previous life and felt deep fear of the dark, unknown path ahead. And all of those points of crisis made me feel that guilt for not being grateful for the living gift of a kidney.
As Ann Weems’ expresses in the poem, “Hope tenaciously clings to the hearts of the faithfuland announces in the face . . . of all the dark nights of our souls, that with God all things still are possible, that even now unto us a Child is born!”
Twenty-one days separated from my transplant, I am able to attest that hope does cling tenaciously in my heart, that hope announces in the face of the dark night of my soul that with God, all things are still possible. And most importantly, “Unto us a Child is born!”
Into me a Child is born, and that presence empowers me to walk through my soul’s darkest night into the light that Advent brings.
Today will be a better day it seems. Excruciating pain has lifted for the most part. Yet, I am still facing enormous challenges — getting control of my raging blood sugar readings, reducing the swelling that is very uncomfortable, dealing with frequent changes to my medication dosages that are so necessary to prevent my body from rejecting its new kidney, eating the right foods and NOT eating the things that are strictly forbidden, adhering to a stringent regimen of washing all food properly, lathering on hand sanitizer every time I possibly can, wearing sunscreen at all times and never, ever forgetting to wear my mask.
Fortunately, I am married to a caregiver who is the “spreadsheet king” and he has my every move on his spreadsheet, including times and dosages of about 20 medications taken every day — 38 pills, 6 liquids and 6 injections. Three to four times Every week, we have appointments at Mayo Cinic starting at 6:15 am and sometimes continuing into the afternoon. It is making us very tired and overwhelmed, exhausted. There is not one thing about our lives that has not changed.
So I would not be honest if I did not admit my worries, my obsessiveness, my overthinking, my fear, my vivid imagination about all that could go wrong and my wondering what will happen tomorrow, the next day, and all the days ahead.
It is the best advice, I think, to set my focus on two words — just breathe. Just breathe, and have faith that everything will work out for the best. And it won’t hurt to ponder and lean on the many promises of God’s care and grace. These are but a few:
Philippians 4:6-7 Do not be anxious about anything, but in everything by prayer and supplication with thanksgiving let your requests be made known to God. And the peace of God, which surpasses all understanding, will guard your hearts and your minds in Christ Jesus.
Hebrews 10:23 Let us hold fast the confession of our hope without wavering, for he who promised is faithful.
Psalm 91:5-10 You will not fear the terror of the night, nor the arrow that flies by day, nor the pestilence that stalks in darkness, nor the destruction that wastes at noonday.
Isaiah 41:10 Fear not, for I am with you; be not dismayed, for I am your God; I will strengthen you, I will help you, I will uphold you with my righteous right hand.
Proverbs 3:5 Trust in the Lord with all your heart, and do not lean on your own understanding.
Jeremiah 29:11-14 For I know the plans I have for you, declares the Lord, plans for welfare and not for evil, to give you a future and a hope. Then you will call upon me and come and pray to me, and I will hear you. You will seek me and find me, when you seek me with all your heart. I will be found by you, declares the Lord, and I will restore your fortunes and gather you from all the nations and all the places where I have driven you, declares the Lord, and I will bring you back to the place from which I sent you into exile.
2 Corinthians 5:7 For we walk by faith, not by sight.
Psalm 34:4 I sought the Lord, and he answered me and delivered me from all my fears.
Joshua 1:9 Have I not commanded you? Be strong and courageous. Do not be frightened, and do not be dismayed, for the Lord your God is with you wherever you go.
It can only harm me to be worried and anxious, frightened and overwhelmed, concerned about what the days ahead will look like. It seems to me that I should just breath, all the while leaning on the everlasting arms.
On another note, please pray for me as I recover from my kidney transplant. I am so grateful that you are walking with me on this journey that often felt so frightening and is now a very difficult and stress-filled recovery time. Your thoughts and prayers mean so much. Your donations have helped us with the expense of staying in Jacksonville, near Mayo Clinic, for this month of post transplant care. If you can contribute or if you would like to read more of the story of my illness, please visit the Georgia Transplant Foundation’s website at this link:
A “Go Fund Me” page is also set up for contributions to help with the enormous costs related to the transplant, including medications, housing costs for the month we have to stay near the transplant center, uncovered medications and medical equipment, and other unforeseeable costs for my care following the transplant. If you can, please be a part of my transplant journey by making a contribution at this link
Today Is a troubled day for me. I need to know God as “my ever present help in time of trouble” on this day of kidney transplant aftercare that began early this morning. Being in the Mayo Clinic lab by 6:30 is not so gentle a way to treat a person with a huge, painful incision! On the way to Mayo Clinic, bumps and potholes in the road caused sharp pain. Walking the hallways at Mayo Clinic required far more energy than I currently have. I am weak and shaky, struggling with significant pain, and suffering from the side effects of very potent medications.
The medical visits will end around 2:00 pm today. We hoped to be able to rest until the next medical appointments on Wednesday. But the transplant doctors need to repeat my blood tests early tomorrow. They made some significant changes to my medications to try to address some concerns they have about my kidney function, excessive incision pain, blood sugar and fluid retention.
It occurred to me today, that in some ways, all of the inflexible after surgery care and the daunting medication regimen seems as if it is not at all about me; it’s about the kidney! It’s all about the kidney!
I can live with that if I can remember that God cares for me, for every part of me, and of course, for the new kidney. But my hope rests on the grace-giving God who also cares for the whole of me — what’s going on with me physically, emotionally and spiritually.
A comforting hymn text about God’s care has lifted me up into hope at various times in my life. “Day by Day, and with Each Passing Moment” was written by a young Swedish woman, Carolina Sandell Berg. Like the Psalmist, Berg learned early in life to trust in God’s strength to help her overcome times of suffering. She learned that when pain and tragedy strike, God may use that experience to deepen our faith.
When Carolina was 26-years old, she experienced a tragedy which profoundly affected her life. As she and her father crossed a Swedish lake, the ship suddenly lurched, and before her eyes, her father was thrown overboard and drowned. Like the Psalmist who gave us a strong affirmation with these words, “God is my refuge, an ever present help in time of trouble,” Carolina Berg found hope in God day by day.
Although my present situation is very different from her tragedy, I am learning all over again about how hope and faith work for me. This is my paraphrase of Carolina Sandell Berg’s wonderful hymn:
Day by day and with each passing moment,
Strength I find to meet my trials here;
Trusting in God’s kind and wise bestowment,
I’ve no cause for worry or for fear.
God whose heart is kind beyond all measure
Gives unto each day what She deems best —
Lovingly, it’s part of pain and pleasure,
Mingling toil with peace and rest.
Every day the God of love is near me
With a special mercy for each hour;
All my cares God’s love will bear, and cheer me,
God whose name is Counselor and Power.
The protection of God’s child and treasure
Is a charge that on Herself She laid;
“As thy days, thy strength shall be in measure,”
This the pledge to me She made.
Help me then in every tribulation
So to trust Thy promises, O Lord,
That I lose not faith’s sweet consolation
Offered me within Thy holy Word.
Help me, Lord, when toil and trouble meeting,
Ever take, as from a mother’s hand,
One by one, the days, the moments fleeting,
‘Till I reach the promised land.
On days like this one when I feel weary and weak, when I experience pain and need an extra measure of compassionate care, I know I can look to God who is “my ever present help in time of trouble.” And I know that God, who is both father and mother to me, will walk beside me day by day, every day, through every passing moment.
On another note, please pray for me as I recover from my kidney transplant at Mayo Clinic in Jacksonville, Florida. I am so grateful that you are walking with me on this journey that often felt so frightening and is now a very difficult recovery. Your thoughts and prayers mean so much. Your donations through the Georgia Transplant Foundation have helped us get very close to our goal. The Foundation will match donations dollar for dollar up to $10,000, and you have already helped us raise $9,015. If you are able, please help us get to the $10,000 matched amount. We are almost there. If you can contribute or if you would like to read more of the story of my illness, please visit the Georgia Transplant Foundation’s website at this link:
A “Go Fund Me” page is also set up for contributions to help with the enormous costs related to the transplant, including medications, housing costs for the month we have to stay near the transplant center, uncovered medications and medical equipment, and other unforeseeable costs for my care following the transplant. If you can, please be a part of my transplant journey by making a contribution at this link
I’m pretty sure it’s not cool to get emotional about having a medical evaluation. But I did. I passed a life milestone yesterday when I completed my week long medical evaluation at Mayo Clinic in Jacksonville, Florida. Getting to an actual kidney transplant is a long journey, five years, ten years, people wait even longer.
I arrived exhausted and holding on to a fair amount of cynicism, barely able to believe that I might actually get a kidney transplant some day. As is my custom, I have trusted God along the way for the best outcome for me, most of the time. But five years of dialysis — every single day for eight hours a day — can wear down one’s hope. Five years of waiting on a transplant list with thousands of other waiters can test one’s faith.
About a month ago, I had a very bad experience with my first transplant center. It took me to a very low place of feeling that I had been devalued by the caregivers who had known me for almost four years. I was on the transplant list, but there was virtually no communication with me during those years. And just as we were about to turn a corner with a transplant actually in view, they abruptly took me off of the active transplant list. It became very clear that the process with this particular transplant center would probably not lead to a transplant for me anytime soon. I was emotionally devastated, but more importantly, I no longer felt comfortable placing my life in their hands. So I gathered up all my emotional baggage and took it with me to Mayo Clinic. I did not expect what happened to me there.
We turned in to the Mayo campus on a road framed with lush, spreading trees. Palm trees were interspersed among the large trees and plants covered the ground. The landscape was made even more beautiful by a large pond with a fountain sending water into the air. It reminded me of the Living Water that quenches our thirst forever. I looked up and saw the words, “Mayo Clinic” and suddenly felt a sense of being home, of being in a place with people who would care for me. A silent tear slid down my face and I felt very full, the lump in my throat extending into my chest.
The week was full of appointments and medical tests, beginning with the transplant nephrologist, Dr. Mai, who is one of the most compassionate and personable physicians I have ever met. He took a complete history, examined me thoroughly and answered ever question we had.
I must say that every single employee at Mayo Clinic was professional, pleasant and kind. It was an atmosphere of caring and compassion. It was a busy place that never felt rushed. They pulled off a “medical miracle” of a sorts, scheduling about thirty appointments for me and never being off schedule for even one of them.
There are places throughout the buildings to stop and rest, many of them filled with the sounds of soothing classical music. It is a place that values art, which you will find in every nook and cranny. And then there is the atrium for meditation, a space closed off from the rest of the clinic. When you enter, a large flowing fountain makes the only sound you will hear. In that silent place, the lighting is dimmed and there are comfortable places to sit. A beautiful altar-like table draws your focus.
After the full week of tests, scans, blood draws and consultations, we were back with Dr. Mai who patiently explained every test result. He was encouraging about the kidney transplant and said more than once that I needed a transplant as soon as possible. “But what do I know?” he said. “I’m just a regular doctor. The surgeon is the one who will tell us if a transplant is possible.”
Then we moved to our very last appointment with the transplant surgeon, the one who would hold my fate in her hands. I feared this last appointment and worried about it throughout the week. The surgeon would have the last word.
How delighted we were to meet Dr. Perry, a rather young woman who obviously knew her craft. She looked over all the scans and examined the potential site of the incision. After a lengthy Q & A, she sent us on our way. She had the final word, the last words of the week. “Let’s get you a kidney!” she said enthusiastically, and all the hope I thought I had lost rose up inside me.
When we drove away, I felt incredibly sad to be leaving that caring place. The lump in my throat came back and I was filled with gratitude, confident that God had chosen Mayo Clinic to help me take back my life.