Few words have been written that are more thought provoking than these words offered by Julia Wright. Ponder them. Reflect on them. Take a few moments to consider where you are in these words.
Transplant Day Thirteen
November 24, 2019
I have been offered a blessing. From a stranger.
I met this kind person through a group of clergywomen called RevGalBlogPals. She is a spiritual director from British Columbia. Through the RevGalBlogPals Facebook group, she happened upon parts of my transplant journey in my blog posts. She began praying for me. Then she offered me the gift of spiritual direction as I pass through this complicated time in my life.
It has been several years since I worked with a spiritual director, so I was very humbled and thankful to hear from her. These were the words of lovingkindness she wrote to me in our first session.
May you feel the gentle touch of Spirit in this session.
May you know that I am holding you in healing Love.
May you be reminded of your worth and strength…
As you rest.
~ This is spiritual direction when pain does not allow for words.
On the day I received her message, it was so true that pain did not allow for words. The assault on my body was unspeakable on that day. I remember when many years ago my husband’s cardiologist came into his hospital room a few days after his heart surgery. The cardiologist said this: “Let’s look at this terrible thing we’ve done to you.”
His words resonated with me post transplant when, in the throes of struggle and pain, I definitely was looking at the terrible thing they had done to me. I could not quite see a brighter, pain-free future. I could only focus on the physical systems that were in complete disarray after the transplant. It did not help when medical staff told me it was all normal. The way I was experiencing it all was far from normal.
I wondered if I would ever live “normal” again. Or if perhaps I would live into a new normal of life after receiving a transplanted organ. I was not sure, and definitely not confident, that all systems would levelize into something I could tolerate. My spiritual director’s wisdom knows that to have physical normalcy, I must also seek emotional and spiritual normalcy. That would mean healing wholly — from the outer visible body to the inner invisible one. It would mean transformation. It would mean living my life while watching constantly and diligently for any sign that something was physically wrong.
When my spiritual director suddenly appeared, I knew that she would help me explore my spiritual state, entering into community with me and pointing to the healing I could not yet see.
Thanks be to God for the beloved community she has offered me, community that forms in unexpected places, in unexpected times, just when I needed community the most.
I’m getting to know myself. Again! Moving through life takes one through changes large and small. We slip past the small ones pretty much unscathed. But oh, those large ones! The large changes are another story altogether. Sometimes they cause us to miss a step or two. Sometimes they stop us right where we stand. Sometimes they throw us all the way to the ground. But they always get our attention.
Chronic illness is one of those ‘knock-you-to-the-ground” changes, especially when an illness happens suddenly. In a recent New York Times article, Tessa Miller shares how sudden illness changes one’s life and how chronic illness changes life forever.
“Seven Thanksgiving ago, I got sick and I never got better,” Miller writes. She goes on to describe the conundrum of chronic illness.
When I was diagnosed, I didn’t know how much my life would change. There’s no conversation about that foggy space between the common cold and terminal cancer, where illness won’t go away but won’t kill you, so none of us know what “chronic illness” means until we’re thrown into being sick forever.
I can identify with the changes Tessa Miller describes. The onset of my chronic illness five years ago was sudden, unexpected and permanent. My kidneys failed — simple as that. And I entered into the unfamiliar world of daily dialysis, a world I never expected to be in. And, yes, it was life-changing.
Tessa Miller makes another very insightful point. She explains how, once you find yourself in the fog of the changes you’re facing because of a chronic illness, one change presents the biggest challenge – the change in your relationship with yourself.
There is no debate: when chronic illness disturbs the equilibrium of your life, your relationship with yourself changes. You grieve a version of yourself that doesn’t exist anymore, and a future version that looks different than what you had ever imagined.
Chronic illness can shatter career goals and life plans. You learn learn a “new normal” in their place. But the acceptance of a “new normal” comes after the trauma. And trauma does happen, trauma that necessarily calls for therapy, either formal or informal.
Emotional work definitely needs to be done, and emotional work around chronic illness can look a lot like grief therapy for a passing loved one. You lose your self, at least temporarily. Your self changes.
So make sure to spend some time looking for YOU. Intentionally. Being open to whatever you find in yourself. Practice seeing yourself as the person you are instead of the person you were. Looking in the proverbial mirror gives you an image of the new version of yourself. Get to know her. Celebrate her resilience. Above all, be patient as you get to know her. You may be surprised at how much you like and admire her.