Aging, Change, Contemplation, Courage, discouragement, Fear, Illness, Risk, Stillness

Here’s to the Crazy Ones!

It’s true, isn’t it? Without the risk of going too far, stepping out of our comfort zone, we will probably never know just how far we can possibly go. But oh, the complete comfort of that comfort zone hems us in completely. We cannot move. We cannot take a step into new life. We cannot know what we might have accomplished. We cannot free ourselves from the bondage of fear.

I’ve been there and I have a notion you have, too. In fact, I can recall many times when I could not overcome my fear enough to take a risk. One time in particular has haunted me for almost 30 years. I wonder what my life would look like today if I had taken that particular risk — moving to a new state, to a new position, to a larger city, to a different house on a different street. That one single refusal to step out of my comfort zone has troubled me to this day.

Risk-taking is not easy. Change is difficult for some people, and some of us can convince ourselves to avoid change at any cost. Huge changes, even tiny changes, simply frighten those of us who have convinced ourselves that we are not risk-takers. Yet, I can think of so many persons who have decided that changing their lives — maybe even changing the world — is worth the risk. I will never forget one of my seminary professors whose words in a chapel sermon changed the course of my life.

Is what you’re doing worth giving your life for? Because every day you live, you are actually expending your life a little at a time doing whatever it is you’re doing.

– Dr. Paul Simmons

I left the chapel that day, walked across the campus to my office and resigned from my job, setting my sights on enrolling in classes to complete a Theology degree. A risk! A big risk that I was determined to take for two reasons: 1) I actually believed I could change the world; and 2) I was young, bold and unafraid. I’m not so young anymore, and the courage and boldness to change is small in me. It feels like being stuck, and I think it’s the first time in my life I have felt so thoroughly stuck. A brand new mantra for my life is this: “Stuck is more harmful to me than risk. I am not afraid to take a risk!”

Still, there is a part of me who longs to change the world, at least my corner of it. There is this alter ego inside me who actually believes she can change the world. That is the part of me that believes injustice can be conquered, wrongs can be righted, equality can be reality and liberation can emerge out of any form of bondage. Crazy? Probably, but I know of many kindred spirits who would be all-in on changing the world — Malala Yousafzai, Emma Gonzalez, Greta Thunberg, Crystal Echo Hawk, Amanda Gorman. Men are on the list of risk-takers, too. One in particular died in 2011 at age 56, but left behind a lasting legacy that was an example of what a human being is capable of doing.

The ones who are crazy enough to think they can change the world, are the ones who do.

– Steve Jobs

I have given thought to those words, as well as something else Steve Jobs said when he was dying of pancreatic cancer: “Death is mankind’s best invention! I looked in the mirror every day wondering if what I am doing today is fun for me. If the answer was no for several consecutive days, then I have to change something!”

Yes, I am stuck right now, and for several days I have had to admit that what I am doing every day is not fun for me. Nor is it anything significant enough to change the world. So I do need to change something. I’m not sure what sort of change I need to make or how risky the change might be. STUCK! No matter what I decide to change — big risk or small risk — it won’t be easy. And I have to look into myself, into my soul, and ask myself if I am able to take a risk or even willing to take a risk. Truthfully, I know in the depths of my being that refusing to take a risk right now will leave me stuck, maybe even permanently stuck. I don’t like the sound of that. I don’t like the stark reality of that. Small risk or big risk — I know I need to change something in order to truly live!

Like the little goldfish in the small bowl, I’ll skip the bigger bowl and shoot for the ocean.

– Rev. Kathy Manis Findley


I used to be “one of the crazy ones,” always taking risks and most often taking big ones. The visual goldfish metaphor is one that described me well throughout my years. I was not one to leap from a small fishbowl to one that was a little larger. I was much more likely to take a brave, risky leap out of a fishbowl and into an ocean! Until now! Until aging and illness and displacement took its toll. I’m definitely not as young as I was in my former and more courageous days. I am not as physically well as I used to be, and I am not living in the town that was my home.

I am facing a three-headed enemy — age, health and displacement. In truth, this enemy does have enough power to keep me stuck, depressed and disheartened. At this moment, I don’t yet know what I plan to do about it, but I do know it will probably call for a leap, a risk, a change and maybe doing something a little crazy.

At this moment, I’m not up for crazy. I need a little contemplative time in my safe space to look deeper into my soul. I’m not at all sure what will come out of my time looking at soul things —maybe some extra peace or maybe renewed hope, new thinking, fresh courage, some sort of healing. Maybe even a little craziness that helps me consider some risky changes in my life. What I am sure of is that I do not enter my soul-searching space alone, for God has walked with me on every step of my journey. I cannot plan anything right now, but there is someone who watches over me who is making plans I cannot make.

For I know what I have planned for you,’ says the Lord.
‘I have plans to prosper you, not to harm you.
I have plans to give you a future filled with hope.
When you call out to me and come to me in prayer,
I will hear your prayers.’

Jeremiah 29:11-12 NET

I will take risks again someday. I will reclaim the “crazy” part of myself that was never afraid to risk going too far. I will embrace change, inevitable change, with more courage than I have at this moment. I will take another big risk one day soon that will remind me how far I can go and how high I can leap. Like the little goldfish in the small bowl, I’ll skip the bigger bowl and shoot for the ocean. Until I can do that, I’ll be in my sacred space with the One who has never left me and has never let me walk alone.

Thanks be to God. Amen.

You Do Not Walk Alone, Elaine Hagenberg


Emotions, Faith, Illness, Isaiah, Psalm 73, Questions, struggle, Uncategorized, Unfaith

Musings on Unfaith

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Unfaith! Such an unsettling word that may well describe where we sometimes find ourselves! I am certain that unfaith applies to me, to the times when my soul is troubled, to the seasons when my faith becomes small. Unfaith most definitely takes over in my heart at times, and in those times, my journey is a struggle. So I battle against unfaith, all the while simply wanting to understand it. This is my truth: I fight unfaith, praying to be rid of it, writing down my emotions around it, reading my Bible when I cannot live with unfaith another minute. My skirmish with unfaith often leads me to the words of the Psalmist.

In yesterday’s struggle with unfaith, I happened upon Psalm 73. It is a rather lengthy Psalm, as Psalms go, and it spends a great deal of time describing wicked people. I rushed through it, I think, because I was searching for inspiring words about unfaith and because I all already know a lot about wicked people. I can, in fact, describe wicked people almost as passionately as does the Psalmist. On top of that, my description of wicked people often includes some choice and inappropriate words.

I plowed on through the Psalm when, out of the blue, one particular verse “hit me upside the head!” (That’s southern slang!) Verse 14 came much too close to my soul. It described my emotions and showed me myself.

All day long I have been afflicted,
and every morning brings new punishments.

— Psalm 73:14 NIV

Oh my! There it is: a succinct statement that so fully reflects what I had been feeling for the past week. It is unpleasant to read, as if it is stating my disconcerting reality and then forcing me to ask myself a question I would rather avoid. Still, I dare to ask myself — “So what are you going to do about your current state?” — knowing that I will likely not have an immediate answer nor a reassuring one. Sometimes I think that all of my feelings and responses come from my unfaith.

I should give you the backdrop for my Psalm 73 experience. I have felt unwell for several days — unrelenting fatigue, deep muscle aches, shortness of breath, trembling, hand tremors and several other troubling symptoms. The reality is that since my kidney transplant in November, I have been plagued with less than perfect health and a very compromised immune system.

Last week, my immunosuppressant medication dosage was increased, something I always dread because I know the distress that usually follows. This time, the side-effects seem worse than they have ever been. I struggle with the reality that so many parts of my body are just not working normally and despair is one of my recurring feelings, despair that, on most days, I have to fight against.

I have learned that I can fight against despair and that often I must. Despair does a number on the soul and spirit, on the place where my emotions live. So, yes, I can fight it, but the fight is exhausting. I can stand courageously and face off with despair. At times, I can even rise above it, but the encounter leaves me deep-down weary.

As for my spirit? Well, my spirit constantly searches for God’s comfort, for holy relief and answers to my questions. I try to attend to my spiritual health, as well as my emotional and physical health, often without much success. I sometimes experience God as a comforter who is far away. I do not often hear God’s voice, and I am not one to beg God for healing. Is all of this struggle because of my unfaith?

I have shared far more confession and self-revelation than anyone needs to hear. I do it because sometimes I believe that release might come if I can give voice to my pain and discouragement, if I can own my weariness and tell my story. Telling is not a quick-fix miracle cure, but telling another person how I feel gives me an extra measure of strength and resolve. And telling all of you who read my blog always means that many of you will offer prayers for me.

After sharing with you that I sometimes feel distant from God, this morning I caught an unexpected glimpse of God. It was just a tiny glimpse, though it was also a comforting, healing glimpse. I caught a glimpse of God in the place I find God most often — through the words of the Prophet Isaiah. The Book of Isaiah is my go-to place when I find myself so weary that I feel as if I cannot take another step.

Selected passages from Isaiah 40 and 41:

Do you not know?  Have you not heard?
The Lord is the everlasting God, the Creator of the ends of the earth.
He will not grow tired or weary, and his understanding no one can fathom.

He gives strength to the weary and increases the power of the weak.

Even youths grow tired and weary, and young men stumble and fall;
but those who hope in the Lord will renew their strength.
They will soar on wings like eagles;
they will run and not grow weary,
they will walk and not be faint.

Isaiah 40:28-31 NIV

So do not fear, for I am with you; do not be dismayed, for I am your God.
I will strengthen you and help you; 
I will uphold you with my righteous right hand.

For I am the Lord your God who takes hold of your right hand
and says to you, Do not fear; I will help you.

— Isaiah 41:10,13 NIV

For some reason, I felt an urging to read Psalm 73 again. As I read it again, I found a clear and enduring declaration of God’s presence that rings so true to me on my best days.

Yet I am always with you; you hold me by my right hand.

You guide me with your counsel, and afterward you will take me into glory.

Whom have I in heaven but you? And earth has nothing I desire besides you.

My flesh and my heart may fail,
but God is the strength of my heart
 and my portion forever.

—Psalm 73:23-26 NIV

This is the spiritual place I want to be — the place where I know that God is the strength of my heart and my portion forever — in spite of pain, in spite of discomfort, in spite of uncertainty, in spite of the life reality that my questions will not always have answers, in spite of my unfaith. I am convinced that unfaith is always with us like “a thorn in the flesh,” an ever-present oppressor, a silent demon that steals into the soul. But I am even more certain that, along with unfaith, there is pure and true faith. Perhaps we cannot know abiding faith without also knowing the disconcerting seasons of unfaith.

So these are my musings about unfaith, prompted by a Psalm. Isn’t that just like God, though, offering me a grace gift by gently guiding me through a Psalm that reaffirms God’s protection? Isn’t that like God, to freely give me reassuring grace? Isn’t it just like God, to give me the gift of presence, a gift freely given to me even when I doubt, even when I am struggling with a season of unfaith?

Thanks be to God for the epiphany that, in my heart and soul, faith has most assuredly come, though bringing unfaith with it. Thanks be to God for this insight: that growing in faith means descending into my unfaith for as long as it takes for its oppressive darkness to give way to God’s wonderful light.

As I walked through this part of my faith journey, I could not help but remember the words of a hymn that declares that we are held by a firm foundation and, through words spoken by God, promises us protection, strength and grace.

* Fear not, I am with thee, O be not dismayed,
For I am thy God, and will still give thee aid;
I’ll strengthen thee, help thee, and cause thee to stand,
Upheld by My righteous, omnipotent hand.

When through the deep waters I call thee to go,
The rivers of sorrow shall not overflow;
For I will be with thee, thy troubles to bless,
And sanctify to thee thy deepest distress.

When through fiery trials thy pathway shall lie,
My grace, all sufficient, shall be thy supply;
The flame shall not hurt thee; I only design
Thy dross to consume, and thy gold to refine.

In your quiet time, spend a few moments hearing this hymn as you worship with the congregation of First-Plymouth Church in Lincoln, Nebraska.

*Author: George Keith 1787; R. Keen, 1787
Source: Rippon’s A Selection of Hymns, 1787
Copyright: Public Domain

anxiety, Calamity, Change, Comfort, Community, Compassion, Confusion, Darkness, Death, Despair, Fear, God's Faithfulness, Grace, Hope, Illness, Isolation, life, Loneliness, Loss, Love, Mourning, Pandemic of 2020, Sorrow, Suffering, Tears, Terror

“Crimson Contagion,” Grace and Eternal Hope

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Today of all days, with the entire world embroiled in a real live pandemic, I will not write out of political bias. Instead, I want to open our eyes to some very troubling present realities. My focus is on the coronavirus pandemic in the United States and how circumstances have transpired, both on a logistical level and a human one. I read a Huffington Post article this morning revealing that last year the U.S. Department of Health and Human Services conducted a months-long exercise that showed that the nation was unprepared for a pandemic. The exercise, code named “Crimson Contagion,” had chilling similarities to the current real-life coronavirus pandemic. That fact got my attention!

microscopic magnification of coronavirus that causes flu and chronic pneumonia leading to deathThis pandemic has taken a toll on so many Americans. Mothers are struggling with children being at home, some having to learn on the fly how to home school them. Families grieve the loss of loved ones who died from the virus. Older adults fear their increased vulnerability and their body’s inability to fight the virus. Immunosuppressed persons like I am are terrified to leave home and are incessantly washing their hands, wearing masks and using hand sanitizer. Many people have lost their jobs while businesses all over the country have shut their doors. Churches have suspended worship services and other gatherings indefinitely. That is merely a tiny snapshot of the human toll the coronavirus is taking.

On top of any list we could make describing loss, inconvenience or isolation, there is widespread, overwhelming fear that has made its way into our very souls. This is a pandemic that has descended upon all of us — real people with real fear.

I’ll get back to the human toll of this virus, but I want to say a bit more about the “Crimson Contagion” exercise, which involved officials from more than a dozen federal agencies. The Huffington Post described the “Crimson Contagion” scenario:

 . . . several states and hospitals responding to a scenario in which a pandemic flu that began in China was spread by international tourists and was deemed a pandemic 47 days after the first outbreak. By then, in the scenario, 110 million Americans were expected to become ill.

The simulation that ran from January to August exposed problems that included funding shortfalls, muddled leadership roles, scarce resources, and a hodgepodge of responses from cities and states . . . It also became apparent that the U.S. was incapable of quickly manufacturing adequate equipment and medicines for such an emergency . . .

According to a New York Times report, White House officials said that an executive order following the exercise improved the availability of flu vaccines. The administration also said it moved this year to increase funding for a pandemic program in HHS.

But Trump’s administration eliminated a pandemic unit within the Department of Homeland Security in 2018. And weeks after the first real coronavirus case was diagnosed in the U.S., Trump submitted a 2021 budget proposal calling for a $693.3 million reduction in funding for the Centers for Disease Control and Prevention.

There you have it! In the throes of our real time pandemic, we hear of a “play-like” pandemic — a simulation conducted in 2019 that might have prepared us all, including our nation’s leadership. That didn’t happen, and those of us who have been in the world for so many years know the saying well: “Don’t cry over spilt milk.”

So we wipe up the milk that’s all over the table in front of us, and then we go about making our way through the dark, murky waters of this pandemic. We wash our hands, distance ourselves from others, stay at home, figure out how to handle our children who are now at home, cancel our travel plans, mourn those who have died, pray for those who are ill from the virus, grieve the loss of the life we knew before and pick up the pieces of what’s left.

What’s left? Well, what’s left is our ability to find ways to help our neighbor, to feed the hungry, to comfort the sick, to reach out to the lonely, to love the children and to pray for one another without ceasing. We may have to learn to do those things by phone or online chatting, but we will find a way.

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Fr. Lawrence Lew, O.P.; public domain; St. Quirinus of Neuss – for those affected by bubonic plague and smallpox; Edwin the Martyr (St. Edmund) — for victims of pandemics; St. Anthony the Great – Patron of those affected by infectious diseases

Those of us who are religious will pray without ceasing — imploring God to be merciful, asking various saints to intercede for us, lighting candles to express devotion and sitting for a moment in the flickering light that reminds us that God’s promise is about light overcoming the darkness.

The light shines in the darkness,
and the darkness has not overcome it.
(John 1:5)

In the end, perhaps we will have discovered that, through this terrifying and expanding virus, that we have learned how to care more and to love deeper. Perhaps we will find that we have a more heartfelt capacity for compassion. For that, God will pour out grace upon our weariness and renew our eternal hope.

If you pour yourself out for the hungry and satisfy the desire of the afflicted, then shall your light rise in the darkness and your gloom be as the noonday.
(Isaiah 58:10 ESV)

May God make it so. Amen.

 

 

anxiety, Challenge, Change, Chronic illness, Comfort, Contemplation, Courage, Emotions, Energy, Faith, God's presence, grief, healing, Hope, Illness, Life Journeys, New Year, Pain, Perseverance, Psalms, Sorrow, Soul, strength, Suffering, The Year Behind

Holding Hope

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A new year has dawned. We’re in it, ready or not! While we cannot control what 2020 brings to us, we can control the way we respond —- to times of joy, times of sorrow and all the times that are just ordinary. No doubt we will greet them all, ready or not!

As the poet reminds us, “Live the year that lies ahead with energy and hope. Be strong, have courage. It is time now for something new.” And so it is. But embracing something new is sometimes difficult. Sometimes our hope is small. Sometimes following our journey into an unknown future is frightening. If the year past still holds us in a place of suffering, if illness lingers with us, if depression and anxiety still rages in us, if persistent grief comes with us into the new year, it is difficult, if not impossible, to leave the past pain behind and embrace something new. So if you feel that you cannot leave past suffering behind you, this little message is for you.

The most important thing you can do is to honestly acknowledge the suffering and accept the fact that it will not leave you just because the new year has arrived. Spend some time contemplating your suffering, how it impacted you in the year past. Can you find any newness at all at the beginning of a new year? Is there some of the suffering  you can see in a different light? Can you respond to it differently? Can you find a way to endure it that is better than the way you endured it in the past? Can you make a concerted effort to learn something from your suffering?

Still, if you are in the throes of suffering — physical, emotional or spiritual — the suggestions above can illicit the strong response, “You’ve got to be kidding! This way of looking at the same thing I’ve endured for years is simply impossible!”

I will be the first to acknowledge the truth of that response, but I must also ask, “What do you have to lose?” Even a change in your response to one place of suffering could bring a small change for you, a change ever-so-slight that has the power to offer you increased resilience and hope. It may be worth a try.

I think it’s important to repeat these wise words: “Live the year that lies ahead with energy and hope. Be strong, have courage. It is time now for something new.”

I suggest that, even if we are enduring suffering, we can greet the new year “with energy and hope.” Hope is always available to us, even when we cannot see it or feel it.

From the promises of Scripture . . . 
“ . . . so that we who have fled for refuge might have strong encouragement to hold fast to the hope set before us. We have this as a sure and steadfast anchor of the soul, a hope that enters into the inner place.
 — Hebrews 6:18-19

From the depths of our souls . . .
“Why are you cast down, O my soul, and why are you in turmoil within me? Hope in God; for I shall again praise him, my help and my God.”   — Psalm 42:11

“I wait for the Lord, my soul waits, and in his word I hope.”  
— Psalm 130:5

But I will hope continually and will praise you yet more and more.”  — Psalm 71:14

The Scriptures can be comforting to us. They can lift up courage in us and they can give us strength to face all of our tomorrows, but the place where hope really lives is within us. We can reach down for it, hold it close, and allow it to help us move forward. No matter what manner of suffering we hold, hope can guide us.

I leave you and your journey into 2020 with the wise words of Corrie Ten Boom:

“Never be afraid to trust an unknown future to a known God.”

 

Angels, Darkness, Fear, Gratitude, Illness, Kidney Transplant, Loss, Pain, Psalm 91, Refuge, Suffering, Thanksgiving

Safe from the Terror of the Night

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Today is our day of giving thanks, intentionally. Not that we should fail to give thanks every day, it’s just that today is the day we give communal thanks. Whatever community we are a part of joins hearts in expressing gratitude. There has been no shortage of calls to thanks giving from faith communities, neighborhood groups, classes, cities . . . and the list could go on and on.

“What are you thankful for?” is the common question. But I was inspired yesterday by a message from a member of my Sunday School class who posed three questions. The questions gave giving thanks a fresh meaning for me and lifted me up from Thanksgiving Day humdrum to a time of genuine contemplation about what I am truly thankful for. These are the words of her message:

Three things I invite you to consider about gratitude: what we are grateful for, what we hope to be grateful for one day, and what we are grateful for that was borne out of hardship or pain.  

I am stopped in my tracks by the third question: “What are you grateful for that was borne out of hardship or pain?” Sitting in this place — post transplant — this question gave me great pause. Under the cloud of very real physical pain, I have had many moments of doubt about my decision to have a kidney transplant. Her question forced me to contemplate that in a deeper way, considering my physical pain as well as my emotional and spiritual pain. 

First, it caused me to hope beyond hope that after this pain and hardship, I will be grateful for my decision. Secondly, it caused me to recall and relive the many times of pain throughout my life and the gratitude that followed. There was sadness in this contemplation and mourning for the losses I have experienced in my life. As I revisited the times of pain in my past, recalling them one by one, there was a Scripture passage from Psalm 91 that kept repeating itself in my mind.

Whoever dwells in the shelter of the Most High
will rest in the shadow of the Almighty.

I will say of the Lord, “He is my refuge and my fortress,
my God, in whom I trust.”

Surely he will save you from the fowler’s snare
and from the deadly pestilence.

He will cover you with his feathers,
and under his wings you will find refuge;
his faithfulness will be your shield and rampart.

You will not fear the terror of night,
nor the arrow that flies by day,
nor the pestilence that stalks in the darkness,
nor the plague that destroys at midday . . .

No harm will overtake you,
no disaster will come near your tent.

For he will command his angels concerning you
to guard you in all your ways;
they will lift you up in their hands,
so that you will not strike your foot against a stone.

For that divine protection, I can give deep thanks for, over my lifetime, I have found refuge under God’s wings time and time again, safe from the terror of the night.

Thanks be to God.

anxiety, Bible, Confusion, Emotions, Exhaustion, Faith, Fear, God's Faithfulness, God’s promises, healing, Hope, Illness, Kidney Transplant, New Normal, Pain, struggle, Wholeness, Worry

Just Breathe!

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Transplant Day Fifteen
November 26, 2019

Today will be a better day it seems. Excruciating pain has lifted for the most part. Yet, I am still facing enormous challenges — getting control of my raging blood sugar readings, reducing the swelling that is very uncomfortable, dealing with frequent changes to my medication dosages that are so necessary to prevent my body from rejecting its new kidney, eating the right foods and NOT eating the things that are strictly forbidden, adhering to a stringent regimen of washing all food properly, lathering on hand sanitizer every time I possibly can, wearing sunscreen at all times and never, ever forgetting to wear my mask.

Fortunately, I am married to a caregiver who is the “spreadsheet king” and he has my every move on his spreadsheet, including times and dosages of about 20 medications taken every day — 38 pills, 6 liquids and 6 injections. Three to four times Every week, we have appointments at Mayo Cinic starting at 6:15 am and sometimes continuing into the afternoon. It is making us very tired and overwhelmed, exhausted. There is not one thing about our lives that has not changed.

So I would not be honest if I did not admit my worries, my obsessiveness, my overthinking, my fear, my vivid imagination about all that could go wrong and my wondering what will happen tomorrow, the next day, and all the days ahead.

It is the best advice, I think, to set my focus on two words — just breathe. Just breathe, and have faith that everything will work out for the best. And it won’t hurt to ponder and lean on the many promises of God’s care and grace. These are but a few:

Philippians 4:6-7
Do not be anxious about anything, but in everything by prayer and supplication with thanksgiving let your requests be made known to God. And the peace of God, which surpasses all understanding, will guard your hearts and your minds in Christ Jesus.

Hebrews 10:23
Let us hold fast the confession of our hope without wavering, for he who promised is faithful.

Psalm 91:5-10
You will not fear the terror of the night, nor the arrow that flies by day, nor the pestilence that stalks in darkness, nor the destruction that wastes at noonday. 

Isaiah 41:10
Fear not, for I am with you; be not dismayed, for I am your God; I will strengthen you, I will help you, I will uphold you with my righteous right hand.

Proverbs 3:5
Trust in the Lord with all your heart, and do not lean on your own understanding.

Jeremiah 29:11-14
For I know the plans I have for you, declares the Lord, plans for welfare and not for evil, to give you a future and a hope. Then you will call upon me and come and pray to me, and I will hear you. You will seek me and find me, when you seek me with all your heart. I will be found by you, declares the Lord, and I will restore your fortunes and gather you from all the nations and all the places where I have driven you, declares the Lord, and I will bring you back to the place from which I sent you into exile.

2 Corinthians 5:7
For we walk by faith, not by sight.

Psalm 34:4
I sought the Lord, and he answered me and delivered me from all my fears.

Joshua 1:9 
Have I not commanded you? Be strong and courageous. Do not be frightened, and do not be dismayed, for the Lord your God is with you wherever you go.

It can only harm me to be worried and anxious, frightened and overwhelmed, concerned about what the days ahead will look like. It seems to me that I should just breath, all the while leaning on the everlasting arms.

 

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On another note, please pray for me as I recover from my kidney transplant. I am so grateful that you are walking with me on this journey that often felt so frightening and is now a very difficult and stress-filled recovery time. Your thoughts and prayers mean so much. Your donations have helped us with the expense of staying in Jacksonville, near Mayo Clinic, for this month of post transplant care. If you can contribute or if you would like to read more of the story of my illness, please visit the Georgia Transplant Foundation’s website at this link:

://client.gatransplant.org/goto/KathyMFindley

A “Go Fund Me” page is also set up for contributions to help with the enormous costs related to the transplant, including medications, housing costs for the month we have to stay near the transplant center, uncovered medications and medical equipment, and other unforeseeable costs for my care following the transplant. If you can, please be a part of my transplant journey by making a contribution at this link

https://bit.ly/33KXZOj

 

 

 

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Spiritual Direction

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Transplant Day Thirteen
November 24, 2019

I have been offered a blessing. From a stranger. 

I met this kind person through a group of clergywomen called RevGalBlogPals. She is a spiritual director from British Columbia. Through the RevGalBlogPals Facebook group, she happened upon parts of my transplant journey in my blog posts. She began praying for me. Then she offered me the gift of spiritual direction as I pass through this complicated time in my life. 

9299C4C7-3373-43D8-A11E-C2349150F942It has been several years since I worked with a spiritual director, so I was very humbled and thankful to hear from her. These were the words of lovingkindness she wrote to me in our first session.

May you feel the gentle touch of Spirit in this session.
May you know that I am holding you in healing Love.
May you be reminded of your worth and strength…
As you rest.
~ This is spiritual direction when pain does not allow for words.

Burning BushOn the day I received her message, it was so true that pain did not allow for words. The assault on my body was unspeakable on that day. I remember when many years ago my husband’s cardiologist came into his hospital room a few days after his heart surgery. The cardiologist said this: “Let’s look at this terrible thing we’ve done to you.”

His words resonated with me post transplant when, in the throes of struggle and pain, I definitely was looking at the terrible thing they had done to me. I could not quite see a brighter, pain-free future. I could only focus on the physical systems that were in complete disarray after the transplant. It did not help when medical staff told me it was all normal. The way I was experiencing it all was far from normal.

I wondered if I would ever live “normal” again. Or if perhaps I would live into a new normal of life after receiving a transplanted organ. I was not sure, and definitely not confident, that all systems would levelize into something I could tolerate. My spiritual director’s wisdom knows that to have physical normalcy, I must also seek emotional and spiritual normalcy. That would mean healing wholly — from the outer visible body to the inner invisible one. It would mean transformation. It would mean living my life while watching constantly and diligently for any sign that something was physically wrong.

Red Wooden Directional Arrow Signs In Green Forest BackgroundWhen my spiritual director suddenly appeared, I knew that she would help me explore my spiritual state, entering into community with me and pointing to the healing I could not yet see.


Thanks be to God for the beloved community she has offered me, community that forms in unexpected places, in unexpected times, just when I needed community the most.

Comfort, Darkness, Despair, Faith, Fear, healing, Hope, Illness, Light, Magic, Miracles, Suffering, Surprise

Surprised by Light

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Transplant Day Seven
November 19, 2019

Today, I am singing in my mind a sacred hymn that often speaks hope to me. The
text was written by William Cowper (1731-1800) and the music by William Howard Doane (1832-1915). In the darkness of the past week, I have been surprised by light.

Sometimes a light surprises
The child of God who sings;
It is the Lord who rises
With healing in His wings:
When comforts are declining,
God grants the soul again
A season of clear shining,
To cheer it after the rain

In holy contemplation
We sweetly then pursue
The theme of God’s’ salvation,
And find it ever new;
Set free from present sorrow,
We cheerfully can say,
Let the unknown tomorrow
Bring with it what it may.

Tomorrow can bring us nothing,
But God will bear us through:
Who gives the lilies clothing
Will clothe His people, too:
Beneath the spreading heavens
No creature but is fed;
And God Who feeds the ravens
Will give His children bread.

Though vine nor fig tree neither
Their wonted fruit should bear,
Though all the fields should wither,
Nor flocks or herds be there
Yet, God the same abiding,
God’s praise shall tune my voice;
For, while in Him confiding,
I cannot but rejoice.

It is so true that “sometimes a light surprises the child of God who sings.” The surprise is almost magic. Surely the light is miracle, and I thank God for the miracle of this new day. The miracle, I think, is that I am able to look at this day in a way that leads to gratitude for life.

I am determined that this will not be a day I describe by pain, but that I would declare this day a day of healing. Today, I want to lean into healing, not suffering — faith, not fear. I am convinced that this is God’s desire for me.

There is no doubt that I have walked through darkness in the past week. It is also my truth that light really does shine out of dark places. My pondering light and darkness this morning brings up a Scripture text I have leaned on many times in my life. I love the New Century Version of this text.

God once said, “Let the light shine out of the darkness!” 
This is the same God who made his light shine in our hearts by letting us know the glory of God that is in the face of Christ.

We have this treasure from God, but we are like clay jars that hold the treasure. This shows that the great power is from God, not from us. 

We have troubles all around us, but we are not defeated. 
We do not know what to do, but we do not give up the hope of living. 
We are persecuted, but God does not leave us. 
We are hurt sometimes, but we are not destroyed.

— 2 Corinthians 4:1-11 New Century Version (NCV)

How accurately this text describes my past few days! How true it is that I have not known what to do about the pain and suffering, yet I refuse to “give up the hope of living.” This is as it should be. This is God’s desire for us — to never give up the hope of living and to cling to the good hope that light really does shine out of darkness.

Sometimes a light really does surprise us when we sing. Singing beats weeping every time. Singing drives out darkness. I have heard often that only light can drive out darkness and I believe that truth. In fact, when I find myself in the middle of darkness, I am convinced that darkness is precisely the place where I am able to see the light at its brightest.

Thanks be to God.

anxiety, Comfort, Despair, Exhaustion, Faith, God's presence, Grace, healing, Hope, Illness, Kidney Transplant, Mayo Clinic, Music, Pain, Soul, Suffering

An Ever Present Help on Troubled Days

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Transplant Day Six
November 18, 2019

Today Is a troubled day for me. I need to know God as “my ever present help in time of trouble” on this day of  kidney transplant aftercare that began early this morning. Being in the Mayo Clinic lab by 6:30 is not so gentle a way to treat a person with a huge, painful incision! On the way to Mayo Clinic, bumps and potholes in the road caused sharp pain. Walking the hallways at Mayo Clinic required far more energy than I currently have. I am weak and shaky, struggling with significant pain, and suffering from the side effects of very potent medications.

The medical visits will end around 2:00 pm today. We hoped to be able to rest until the next medical appointments on Wednesday. But the transplant doctors need to repeat my blood tests early tomorrow. They made some significant changes to my medications to try to address some concerns they have about my kidney function, excessive incision pain, blood sugar and fluid retention.

It occurred to me today, that in some ways, all of the inflexible after surgery care and the daunting medication regimen seems as if it is not at all about me; it’s about the kidney! It’s all about the kidney!

I can live with that if I can remember that God cares for me, for every part of me, and of course, for the new kidney. But my hope rests on the grace-giving God who also cares for the whole of me — what’s going on with me physically, emotionally and spiritually.

A comforting hymn text about God’s care has lifted me up into hope at various times in my life. “Day by Day, and with Each Passing Moment” was written by a young Swedish woman, Carolina Sandell Berg. Like the Psalmist, Berg learned early in life to trust in God’s strength to help her overcome times of suffering. She learned that when pain and tragedy strike, God may use that experience to deepen our faith.

When Carolina was 26-years old, she experienced a tragedy which profoundly affected her life. As she and her father crossed a Swedish lake, the ship suddenly lurched, and before her eyes, her father was thrown overboard and drowned. Like the Psalmist who gave us a strong affirmation with these words, “God is my refuge, an ever present help in time of trouble,” Carolina Berg found hope in God day by day. 

Although my present situation is very different from her tragedy, I am learning all over again about how hope and faith work for me. This is my paraphrase of Carolina Sandell Berg’s wonderful hymn:

Day by day and with each passing moment,
Strength I find to meet my trials here;
Trusting in God’s kind and wise bestowment,
I’ve no cause for worry or for fear.

God whose heart is kind beyond all measure
Gives unto each day what She deems best —
Lovingly, it’s part of pain and pleasure,
Mingling toil with peace and rest.

Every day the God of love is near me
With a special mercy for each hour;
All my cares God’s love will bear, and cheer me,
God whose name is Counselor and Power.

The protection of God’s child and treasure
Is a charge that on Herself She laid;
“As thy days, thy strength shall be in measure,”
This the pledge to me She made.

Help me then in every tribulation
So to trust Thy promises, O Lord,
That I lose not faith’s sweet consolation
Offered me within Thy holy Word.

Help me, Lord, when toil and trouble meeting,
Ever take, as from a mother’s hand,
One by one, the days, the moments fleeting,
‘Till I reach the promised land.

On days like this one when I feel weary and weak, when I experience pain and need an extra measure of compassionate care, I know I can look to God who is “my ever present help in time of trouble.” And I know that God, who is both father and mother to me, will walk beside me day by day, every day, through every passing moment.

 

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On another note, please pray for me as I recover from my kidney transplant at Mayo Clinic in Jacksonville, Florida. I am so grateful that you are walking with me on this journey that often felt so frightening and is now a very difficult recovery. Your thoughts and prayers mean so much. Your donations through the Georgia Transplant Foundation have helped us get very close to our goal. The Foundation will match donations dollar for dollar up to $10,000, and you have already helped us raise $9,015. If you are able, please help us get to the $10,000 matched amount. We are almost there. If you can contribute or if you would like to read more of the story of my illness, please visit the Georgia Transplant Foundation’s website at this link:

://client.gatransplant.org/goto/KathyMFindley

“Go Fund Me” page is also set up for contributions to help with the enormous costs related to the transplant, including medications, housing costs for the month we have to stay near the transplant center, uncovered medications and medical equipment, and other unforeseeable costs for my care following the transplant. If you can, please be a part of my transplant journey by making a contribution at this link

https://bit.ly/33KXZOj

anxiety, Awareness, Bravery, Comfort, Courage, Energy, Faith, Friends, Friendship, Grace, healing, Hope, Illness, Inspiration, journey, Kidney Transplant, Pain, Prayer, Wholeness

Transplant Day Four

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Transplant Day Four
November 16, 2019

Transplant Day Four was a blur. There are no words to adequately describe the volume of information we had to digest just to know how to protect this new kidney. So with all the education we had to learn, both Fred and I are on overload. The pain continues, and hopefully the healing.

But hovering over all the physical and emotional pain are the prayers of the people — my people — my dear friends and family members who are holding hope up high so I can see it. Their love and their compassionate concern is grace for me.

I have few words of my own today, but this prayer shared by Joanna Harader speaks exactly what I need God to hear from me today.

Holy One,

This day may I know
Your health in my body;
Your enlightenment in my mind;
Your grace in my missteps;
Your patience in my frustrations;
Your inspiration where I am stuck
And your tranquility where I need to slow down and rest.

This day may I
Breathe each breath with gratitude,
See each color with wonder,
Hear the hum of the Divine beneath the noise,
Feel your solid presence with each step I take.
Let me live out of your joy
And within your power.

Amen.


Rev. Joanna Harader serves as pastor of Peace Mennonite Church in Lawrence, KS, and blogs at SpaciousFaith.com.

Faith, Fear, Friendship, Hope, Illness, journey, Life Journeys

“Oh! The Places You’ll Go!”

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It’s not so easy to get a new kidney! The stars truly have to align. On top of that, I have to be ready to move up and move out on short notice. Kidney transplants — securely scheduled and marked definitively on official calendars — can always go awry. 

So it is with my scheduled November 15th transplant. It simply fell apart due to one or more of the snafus that can always occur. So we’re off. And we’re on! The word is that the transplant may be scheduled even before the 15th. Or maybe not. But be ready to go!

And that absolute and unambiguous word from Mayo Clinic this morning reminded me of the wondrous Dr. Suess book, “Oh, the Places You’ll Go!” Of course, being on the ready to go to Mayo, I just had to look back at that book and recall some of its infinite wisdom. Turns out, some of it so fully describes my five-year acquaintance with end stage kidney disease.

So here are some snippets that tell my story, oh, so well:

I’m sorry to say so
but, sadly, it’s true
that Bang-ups
and Hang-ups
can happen to you.

You will come to a place where the streets are not marked.
Some windows are lighted. but mostly they’re darked.
A place you could sprain both your elbow and chin!
Do you dare to stay out? Do you dare to go in?
How much can you lose? How much can you win?

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And when you’re alone, there’s a very good chance
you’ll meet things that scare you right out of your pants.
There are some, down the road between hither and yon,
that can scare you so much you won’t want to go on.

But on you will go
though the weather be foul.
On you will go
though your enemies prowl.

 

You’re off to Great Places!
Today is your day!
Your mountain is waiting,
So… get on your way!

Onward up many a frightening creek, though your arms may get sore and your sneakers may leak. Oh! The places you’ll go!

I have said many times that so many of you, my friends and family nearby and far away, have covered me with the grace to move forward even when I hesitated. Because of your prayers, positive thoughts and constant encouragement, I am ready to go!

And so it is with confidence and hope that I can exclaim! “Oh! The places I’ll go!” And though I am inspired by the writing of Dr. Suess, it is through and through theological and Biblical!

Thank you all, and thanks be to God.

 

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On another note, please pray for me as I look toward my kidney transplant as early as November 6th. I am grateful that you are walking with me on this journey that often felt so frightening. Your thoughts and prayers mean so much. If you would like to read the story of my illness, please visit the Georgia Transplant Foundation’s website at this link:

://client.gatransplant.org/goto/KathyMFindley

“Go Fund Me” page is set up for contributionto help with the enormous costs related to the transplant, including medications, housing costs for the month we have to stay near the transplant center, and other unforeseeable costs for my care following the transplant. If you can, please be a part of my transplant journey by making a contribution at this link:

https://bit.ly/33KXZOj

 

 

 

Change, God's Faithfulness, Gratitude, Hope, Illness, Joy, Kidney Transplant, Spirit wind

What If?

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Sometimes blogs express grief or anger, indignation or angst, fear or struggle. But today, this blog, must express joy, relief, hope and gratitude. If you saw my last post about my week-long medical evaluation at Mayo Clinic in Jacksonville, Florida, you know that my hope was that I would be approved for a kidney transplant.

Today, I received the phone call from Mayo letting me know that I am now on the transplant list and ready for a kidney. It was a phone call that rekindled my hope. It brought instant joy and a sense of relief. And then there’s gratitude, that the God who holds the universe holds me, too. 

Through the fear and struggle of 2014, through these five years of daily dialysis, God has held me in arms of love and care. I do not know if fear and struggle are over. Transplant surgery is an ominous thought at times. Strong, immunosuppressant medication for life is an ominous thought at times. My body rejecting the kidney is an ominous thought. There are dozens of “what ifs!” But I try to always look at “what ifs” through this empowering lens:

There is freedom waiting for you,
On the breezes of the sky,

And you ask 
“What if I fall?”
Oh, but my darling,
What if you fly?

― Erin Hanson

What if I fly? What if I take the “wings of the morning?” What if I soar? What if the Spirit Wind blows across my life?

What if?

 

 

 

 

Bible, Birdsong, Change, Christ's Passion, Chronic illness, End Stage Renal Disease, Faith, Holy Week, Hope, Illness, Introspection, Lent, Mindfulness, Palm Sunday, Prayer, Psalm 23, Resurrection, Soft

On Being Soft

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Lent for me was quiet this year. I was sick through most of it, and I spent it pretty much alone, except for the sweet presence of my husband. I didn’t write much. I didn’t paint or craft anything. I was just quiet, and as the forty days passed, I was aware at times of being led by still waters.

Still waters was a spiritual and emotional space I discovered after I was diagnosed with end stage renal disease and throughout my lengthy hospital stays in 2014. So today, I am thinking about some life-sustaining words that were a part of my recovery —  the words of the Twenty-third Psalm, my own version of it.

The Lord is my shepherd. I lack nothing. I have around me and within me everything that I need.

The Lord invites me to stop and to lie down in lush, green meadows.
He leads me beside still waters, 
He restores and refreshes my soul.

He guides me along good and safe pathways for his name’s sake. And for my sake.

Even though I walk through the darkest valley, 
the valley of death’s shadow,

I will not be afraid, for you are close beside me.
Your grace and your care comfort me.

You prepare a place for me, even in the presence of my enemies.
You anoint my head with the oil of gladness.

My cup overflows.

Surely your grace and and your love will follow me all the days of my life,
and I will dwell with you forever.

We know the words of this Psalm far too well. We skip past it as a common text we memorized when we were young. We recite it easily. But the Psalm came to life for me during my year-long illness. It was in my heart, and often on my lips, during long, sleepless nights in the hospital. I experienced the Psalm’s comfort as never before.

As we near the beginning of Holy Week, my thoughts are of the resurrection that comes after the passion, for Christ, yes, but also for me. I’m not thinking of “us.” My thoughts tonight are focused on me, how I experienced my illness in 2014 as my own kind of passion, the passion of confusion, grief, worry, fear. I experienced an expansive and disconcerting view of my mortality, and I did not take to the stark reality of it.

I cannot, of course, even begin to compare my passion to the passion of Christ. Yet in some tender way, I experienced suffering. Palm Sunday comes this Sunday, and in Christian churches everywhere, the people of God will celebrate Christ’s “triumphal entry” into Jerusalem. We will raise our palm branches and shout “hosanna,” as well we should. But Palm Sunday moves us abruptly into the week of Christ’s passion, every pain-filled, grace-filled moment of it. We must not skip that part.

But back to my own passion story, the one that happened the year I thought I was going to die. First you must know a bit about me before the illness. I was persistent and stubborn, a fierce advocate for abused women and children. I did not flinch in a courtroom. I did not shrink when I faced-off with an abuser’s defense attorney. I did not cower standing between a woman and her batterer. I searched the nation to find legal advocacy for abused women and their children. I stood my ground against court-ordered child abuse that would consistently place children in the custody of an abusive parent. I railed against a system that refused to protect children. I was hard. 

The illness came and went over the course of a year. I did not die. Resurrection did come to me, in bits and pieces, slowly, but with the certainty of faith. I was no longer hard. I was movable, malleable, able to be blown about with good and gentle, life-giving breezes. We settled into a new home in a new state, and mostly, I embraced it over time. I fed hummingbirds, listened more deliberately for birdsong, and discovered the way of mindfulness.

When I recovered — slowly — from my illness, I remember the feeling of being soft, though I was not sure what that meant for me. Most certainly, God granted me the patience to move into my resurrection, to embrace it in God’s time, and to wait for it gratefully.

My family said that I emerged from my illness with a change in personality. I was quiet, they said, not like me at all. Inside myself, I knew that they were right. I felt the change. I sat in my own quiet for months. And even now I sense a quietness that wraps me softly as if it were a warm, light blanket. It’s a good place for me, this soft, warm, comforting place.

It’s a good place to continue my resurrection, to learn more about what it means to be soft. As it often happens, I stumbled upon this quote as I wrote this piece. I love the thought it expresses. It resonates with my soul.

Be soft. Do not let the world make you hard.
Do not let the pain make you hate.
Do not let the bitterness steal your sweetness.

— Iain Thomas

These days, I am sensing that a kidney transplant is imminent for me. So to go through that process, I will lean even more into my soft side. That will be a good emotional and spiritual space for me. Soft! Soft facing change and fear. Soft facing uncertainty and new, scary medications. Soft facing the hope of a healthy kidney bringing me a new beginning, a resurrection.

May God continue to lead me beside these still waters. It’s a good place for me to greet resurrection.

 

 

 

 

Chronic illness, Comfort, Darkness, Despair, Emotions, Faith, Grace, grief, Holy Spirit, Hope, Illness, Inspiration, Introspection, life, Light, Pain, Romans 8:26, Silence, Sorrow, struggle, Trust, Wisdom

To the Other Side of Silence

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Barbara Resch Marincel, lifeisgrace.blog

Today is another “Wordless Wednesday.” My friend, Barbara Resch Marincel, is a sister blogger, an insightful writer, and a photographer extraordinaire. You can see one of her amazing works in the image on this post. The image reminds me of a dark time that is slowly changing with the glow of new light. And in that light, the flying birds speak to me of the wind of the Spirit. Barbara’s images are a gift to me, always bringing up a range of emotions.

Here is a bit of how she describes herself on her blog, lifeisgrace.blog.

Blogger, writer, photographer, in varying order. Finding the grace in the everyday—and the not so everyday, while living a full and creative life despite chronic pain and depression.

If you take a few moments of your day to visit Barbara’s blog, you will find enchantingly stunning photography that speaks of joy, pain, life and grace.

Back to “Wordless Wednesday.” So many reasons to be wordless. Some people may not have adequate words to express joy. Others cannot speak of deep sorrow. Some of us have no words because of pain, while others are wordless because they have fallen into the depths of depression.

There is no end to the reasons people are wordless, no end to the seasons in which they find they are without words. I have lived in that season many times, and in that place I could not speak of my pain because words were completely inadequate. I could not speak the pain out loud to any friend, and even for prayer, I had no words. Silence was my close companion.

I love that my friend, Barbara, entitles her blog post “Wordless Wednesday” every week, because in the middle of every week, she reminds me of my seasons without words. Her art is a reminder for me to give thanks that I survived those times, and celebrate that I am now on the other side of silence.

But will not forget that it is no small feat to get to the other side of silence. I must remember that it is not easy to endure silent, grief-filled times and to the other side of them. While living in my seasons of unspoken angst, one passage of Scripture brought me comfort and hope.

The Spirit helps us in our weakness; for we do not know how to pray as we ought, but that very Spirit intercedes with sighs too deep for words. 
— Romans 8:26 (NRSV)

When grief has stolen our words, when we cannot speak and find ourselves in silence, may open our lives to hope, trusting the intercession of the Spirit’s sighs that are far deeper than words. 

Thank you, my friend, for “Wordless Wednesdays.”

And thanks be to God for allowing me to move to the other side of silence.

Amen.

Comfort, Faith, Fear, God's Faithfulness, Illness, Matthew 10, Trust, Truth, Waiting

It’s the Gospel Truth!

8832BB06-FEB5-4DAA-A86D-F8C351B53CA6I was born and raised in the South and spent most of my life in the Bible Belt. In the Bible Belt, one can hear many sayings, expressions and idioms. One of the idioms I seemed to hear continually over the years was, “It’s the Gospel truth!” Always as an exclamation. 

I learned that in life there is truth and there is Gospel truth. I learned that we need both. For instance, in my life at this moment, there is the truth that I am afraid. And there is also the Gospel truth that God watches over me through my fear. 

Sitting on the cusp between daily dialysis and the possibility of a kidney transplant, I entertain varied thoughts and feel disparate emotions. One of them is definitely fear. Thankfully, I feel relatively well physically on most days, but my body never lets me forget that I’m sick. People who know say that a transplant would change my life, that I have become so used to being ill that I don’t know what feeling really well is like. I don’t know about that.

What I do know is that the idea of a transplant is both frightening and enlivening. I also know that it may or may not happen. So I tamp down my emotions, tuck away my fear and basically try not to think about it. Where I am these days is in the place of; 1) not knowing and 2) knowing that God knows. 

As I contemplated this today, I remembered a Gospel song I used to sing back in the day. I have not thought of the song in years, but today its melody ran through my mind over and over. Many well-known musicians have sung it, but the voice I remember most clearly is the voice of Mahalia Jackson.

Why should I feel discouraged, why should the shadows come,
Why should my heart be lonely, and long for heaven and home,
When Jesus is my portion? My constant friend is He:
His eye is on the sparrow, and I know He watches me;
His eye is on the sparrow, and I know He watches me.

I sing because I’m happy, I sing because I’m free,
For His eye is on the sparrow, and I know He watches me.

Whenever I am tempted, whenever clouds arise,
When songs give place to sighing, when hope within me dies,
I draw still closer to Him, from care He sets me free;
His eye is on the sparrow, and I know He watches me . . .

In both Matthew and Luke, Jesus is sending his disciples out into the world. The Gospel of Matthew, chapter 10, begins with these words: 

Jesus called his twelve disciples to him and gave them authority to drive out impure spirits and to heal every disease and sickness. 

In the rest of the chapter, Matthew tells us that Jesus gives his disciples many instructions as he sends them out. Most importantly, he instructs them not to fear. 

Are not two sparrows sold for a penny? Yet not one of them will fall to the ground outside your Father’s care.  And even the very hairs of your head are all numbered. So don’t be afraid; you are worth more than many sparrows.  (Matthew10:29-31 NIV)

Transplant or dialysis for the rest of my life? I don’t know which it will be, and that’s the Gospel truth! I do know that I am afraid, but whenever I fear the future, I am often reminded that I am never outside of God’s care. It is a good thing, an important thing, to know that to God, I am worth more than many sparrows. It’s the Gospel truth!

I thought you might enjoy hearing a contemporary arrangement of “His Eye Is on the Sparrow” performed by Lauryn Hill and Tanya Blount at this link: https://m.youtube.com/watch?v=k7Pk5YMkEcg

Comfort, End Stage Renal Disease, Friendship, God's presence, Grace, Hospital, Illness, Memories

A Horribly Wonderful Year

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Art in foreground: “Horribly Wonderful” from The Land of Froud by Brian Froud, 1976.

Celebrating a five-year anniversary can be a fine excuse for a party! Definitely a five-year milestone can offer a chance to revisit and recall memories. My five-year anniversary is tonight, the night a phone call from my doctor ordered me to get to the ER. It was the night we learned that my kidneys had failed, just like that, out of nowhere, no notice. It was the night that end stage kidney disease turned my world upside down. It was the night that was the advent of a full year of hospital stays, biopsies, surgeries, physical and occupational therapy, loads of questions, very few answers and most of all, a very concerned and fatigued husband.

Fred was my rock, as he has always been. He slept next to me in that horrible excuse for a family bed. He kept vigil at the hospital day and night. When I was able to persuade him to go home to get some rest, he answered my phone calls in the middle of the night when I was sleepless, frightened or lonely.

“Are you up?” I would ask.

“I am now!” 

I don’t really think this anniversary calls for a party, but it does call for some reminiscing and remembering. So last night, Fred and I recalled the year I was so ill, that horribly wonderful year. Interestingly, we have two separate and differing sets of memories. He tells me that, most of that year, I was not aware of much, to the point of not even recognizing him. He tells me that I almost died during three separate critical events.

On my end, I remember none of that. I did lose time in that year, with confusion about losing days, even weeks, when I was unresponsive. I endured hundreds of needle sticks, maybe thousands since I am told my veins had collapsed. I received a port for hemodialysis that promptly caused me to nearly die of sepsis. I had a kidney biopsy that developed a painful bleed. I ate terrible food most of the time. I spent a lot of time in therapy learning to walk, write, identify colors and place square blocks in round holes.

Together we remember the love and care of my church, the family that constantly clamored for updates, the handful of good friends that were present, the food that the church brought to us every single week, and the nurses, angels in disguise.

I must say that, even to this day, I miss the sweet nurses that cared for me with great compassion. They were ever-present when I needed help and, during those long nights, they would often come in with a popsicle, sugar-free of course!

A final memory for today’s blog is the soft, fluffy afghan that my dear friend, Rev. Donna Rountree, brought me from her church. The Disciples of Christ church where my friend served as pastor barely knew me. I had preached there once. The congregation prayed for me, over the afghan, during a church service. Then Donna brought the afghan to the hospital, placed it on me, and told me that it was covered with the prayers of the people. What a special gift! What a special grace!

07CC221A-DFBC-4372-8E66-854CA41B0296When I think of that year, my description of it is “horribly wonderful.” Wonderful because, in the worst of times, God breaks in through the grace of a devoted husband, a caring family, an attentive nurse, a gentle phlebotomist, a close friend, a skilled physical therapist, a loving church family. 

So, yes, I took from that horrible year some wonderful memories, and that is what I can celebrate at this five-year milestone. And what’s more, I am here, still on this side of heaven and grateful for better health and life-saving dialysis. Pure grace!

Thanks be to God.

 

 

Change, Discovering, Illness, life, Loss, Pondering

Giving Primary Energy to Primary Things

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Abstract energy formation

Yesterday was “one of those days.” I spent the day pondering my illness, the constant medical processes in my life, my sense of isolation and my losses. It seems I have failed in the work of giving primary energy to primary things. In fact, yesterday I gave up a great deal of energy obsessing on circumstances I cannot change. But there are circumstances in my life that I can change, and I made some promises to myself: 1) I will try to get out more;  2) I will work on dwelling on life’s positive aspects; and 3) I will focus on primary things and put secondary things on hold.

I received some unexpected help with Number 3 late last night. It was in the blog of Guy Sayles,* a friend I haven’t heard from in years. Stumbling across his thoughts was a serendipity for me. This is part of what he wrote.

I don’t want to reach the end, however soon or later I reach it, and have to admit that I’ve given primary energy to secondary things, toured the periphery rather than made a pilgrimage to the center, and complied with external demands instead of responding to the internal and eternal Voice. For the love of God—I mean it: for the love of God—it’s time to discover or rediscover what I most deeply believe to be true in response to questions like:

What keeps people from knowing, deep in their bones, that they are God’s beloved children? How can we help each other to know?

How can we trust that, because of God’s vast and self-giving love, there is “no condemnation” by God and “no separation” from God? What do communities enlivened by such trust look, sound and feel like? How can we fashion and sustain such communities?

How do grace and mercy heal our brokenness, even when they don’t cure our illnesses or end our pain?

How does love displace fear—in individuals; in families, tribes, and communities; and among nations?

What are the ways of life that place and keep us in harmony with the “grain of the universe”? How do we learn and encourage one another to honor them?

What does it mean—what could it mean?—that Jesus calls us his friends?

There are more. Questions like these shape my vocation now. I can’t number the times the Spirit used the poetry of Mary Oliver to call me back to my calling. It happened again last week. After she died, these words were everywhere:

“Doesn’t everything die at last, and too soon?
Tell me, what is it you plan to do with your one wild and precious life?”

That has been my question for a very long time, for years in fact: What is it you plan to do with your one wild and precious life?

I really must answer that one, knowing that what’s left of my life is much shorter than it used to be. It’s time — it’s past time — for me to give primary energy to primary things, and that’s not a bad idea for you either. For you see, we only get one wild and precious life — just one!

 

* I invite you to visit the blog written by Guy Sayles at this link: https://fromtheintersection.org/blog/

Change, Discovering, End Stage Renal Disease, Freedom, healing, Illness, Life Journeys, Mindfulness, Rest, Restoration, Self care, Serenity, simple joys

I used to be . . .

734D4A65-1E4E-4705-A356-D13DF9C7F9B4I used to be . . . 

It’s a phrase I use a lot these days as I fight off the feeling that in retirement, I am useless. It’s not true, of course, that I am useless. But to be honest, I do feel just a little useless these days, at least some of the time. The reason? I used to be a bona fide workaholic. I used to feel important and productive. I used to be busy all the time, night and day. I used to be a perfectionist. I used to have just a bit of obsessive compulsive disorder, and all,of that drove me to a dangerous place.

The problem is that when you love and believe in your work so much, your work can become your whole life. Then things can get unbearable. So I admit that I am a recovering workaholic. I was the person that put in far more than 40 hours a week and never took a day off. But the critical question I had to answer was this: Is my ego at the root of my workaholism?

What was the job that was important enough to push me to work so hard?

I was a minister and a trauma counselor, and I was executive director of Safe Places, a nonprofit organization that served victims of violence. There was always someone in trouble, someone who had been battered by a spouse, someone trying to escape trafficking, a teen that was recovering from rape, a child that had been abused. So the work was never done.

I loved my work. I believed in it with all my heart. But I could not see what others saw. I could not believe the truth spoken by friends and colleagues, that I needed rest, that my work was hurting me. As much as I didn’t want to admit it, I was working myself sick. Circumstances, and maybe the alignment of the stars, brought me to a “come to Jesus” moment that forced me to take stock of my life. I realized I couldn’t do it all. So I took a very slight respite and pulled back from the constant work. In the meantime, as the stars would have it, we lost our federal funding, and suddenly Safe Places was gone. It was over. 

The stress did not end, though, because those that needed help kept calling . . . my phone. I had no staff left and, though I tried, I simply could not continue helping all these hurting people by myself. So I was forced into an unwanted and unplanned rest. 

During this “rest” time, grief and loss took over my psyche. But miraculously, my body began to rest. My pace slowed down. I was becoming mindful of every moment and what was going on in every moment. And in spite of the grief and sadness, my mind and spirit began to heal. What happened next was the shock of a lifetime. As my mind and spirit began to heal, I finally allowed my body to tell me what was going on. My doctors got to the bottom of it and diagnosed me with end stage kidney disease. Before I could even begin to take it all in, I was hospitalized and on dialysis.

I honestly believe I had worked myself to death, or at least nearer to death than I wanted to be. I spent a great deal of 2014 in the hospital trying to stabilize and then working to take my life back. It was hard work learning to write again, to think again, to walk again. But I made it through to a “new normal” that meant for me at least 7 1/2 hours of dialysis every day for the rest of my life, unless, of course, I am able to get a kidney transplant.

The experience of serious illness changed me. After I began to recover, people told me that I was unusually quiet. I didn’t speak much even when others around me were engaged in meaningful conversations. I knew that I was being quiet, quite unlike my normal personality. I was often silent when normally I would have had a great deal to say. I was different, to be sure, but inside myself I was okay. If I had to describe myself I would say that I was soft, broken open and free. And I was content in that place, although my family was concerned about me. I had traveled to a new place in my life, and it was a good place to be.

So here I sit in my “new normal,” tending plants, painting, cooking, writing, reading, and doing all things for pleasure. Most often I am still tempted to dive in and work on something until I am exhausted. But when the tiredness begins to creep up, something in my body remembers. Remembers I need to rest, to embrace stillness, to just “be.”

Still, I fight my old workaholic ways. Sometimes they push me to do things faster and better and longer. Sometimes my old workaholic ways push my button, the button that accuses me of uselessness, as in, “You are not worth much anymore! What are you going to do to change the world?”

Good news! I have finally given myself permission to not change the world. It has been a major shift for me, but I am seeing the truth more clearly, that I never could have changed the world anyway! So most of the time, when I feel myself pushing past my edge, I walk away. I write a blog post or fiddle with my flowers. I cook something fabulous or watch a little Netflix. So what will I do to live happily in these retirement days? I hope that I will keep studying the secret art of rest. I hope that I will continue to learn the grace of mindfulness, just cherishing the moment, every moment.

I used to be a workaholic. Not anymore.

Oh, and one more thing . . . a prayer. Though my faith tradition has always eschewed prayers to Mary, mother of Jesus, many very beautiful and meaningful prayers are prayed to her. I leave you with this one written by Mirabai Starr.

Mother of Consolation, help me to let myself be consoled. 

I hold it all together, Blessed One. 

I have convinced myself that it is up to me to keep the airplane aloft with my own breath, that I am the only one capable of baking bread and scrubbing floors, that it is my responsibility alone to alleviate the sorrow in the heart of every single person I know. 

But I have forgotten how to weep, Tender One. 

Teach me to reach out to the ones I comfort and ask for their comfort. 

Let me feel the tender touch of the Holy One on my cheek when I wake in the night, weary and frightened. 

Help me to be vulnerable and soft now, broken open and free.

— Mirabai Starr

 

 

Aging, Faith, grief, Illness, Joy, Life Journeys, Lightheartedness, Music, Pain, simple joys, Sorrow

Joy

102F7D81-F946-4E11-A42A-07566031DEABAs I often do, I found today, in my lengthy list of unread emails, a plethora of pleas to do something. Save the bees. Save the libraries. Save the children. Save the political candidate . . . and several other things that someone wants to save.  I care deeply about most of those things that need saving, like the libraries and the children and the bees. And I spend a fair amount of time worrying about them and praying for them to be saved.

But for this day, I am laser focused on saving myself, saving myself from the onslaught of various illnesses, from nature’s effects of aging, and mostly, from a life filled with worry where there should be joy.

Memories flood my mind with sweet, little songs from the past: “The joy of the Lord is my strength . . .”  (1)  “I’ve got that joy, joy, joy, joy down in my heart . . .” (2) Simple songs they were for us when as children we learned every word and took the melodies into our hearts to recall in the years to come.

And so today, I recall them, realizing that whatever may come, I have joy in my heart, and most of all, that I am leaning into the truth that the joy of the Lord is my strength. These were good and positive lessons to learn as a child, with simple music as the teacher. So today, I remember the songs, singing them silently as I write. Singing them aloud would most surely disturb the household. So I keep silent.

It can be a dangerous thing to keep silence, for in those silent times, there can be a flood of memories, thoughts, recollections, and the sacred space so essential to the spiritual life. Today’s sacred space brings these words to my heart:

The Lord is my strength and my shield;
in him my heart trusts;
so I am helped, and my heart exults,
and with my song I give thanks to him.

— Psalm 28:7 (RSV)

You are being strengthened with all power according to his glorious might, so that you might patiently endure everything with joy.

— Colossians 1:11(ISV)

Nehemiah said, “Go and enjoy choice food and sweet drinks, and send some to those who have nothing prepared. This day is holy to our Lord. Do not grieve, for the joy of the Lord is your strength.”

— Nehemiah 8:10 (NIV)

On top of my end stage kidney disease, debilitating fibromyalgia, diabetes, and an almost constant barrage of new diagnoses, I have one job really: to find ways of guarding the joy that makes its home in my heart, to patiently endure whatever comes with joy. I must trust that joy really is there in my heart. I must believe that joy is still a part of my faith. I must know that joy has been with me on my journey, every day, at every turn, over every mountain and through every valley.

I must guard my joy lovingly and persistently. And I must guard my heart, joy’s dwelling place. When new illnesses come along, new concerns, new challenges, new problems and new sorrows, perhaps the most important thing I can do is to guard my heart.

Along with the other passages of scripture that have entered my sacred soace today, there is another tiny scripture passage that has moved me over the years. The writer of the book of Proverbs begins chapter four with a list of life instructions, and for twenty-two verses, the writer admonishes the reader to be vigilant, to be careful, to hold on to instruction, to avoid the path of the wicked, etc. And then in verse 23, the writer of the everlasting wisdom of the Proverbs gives us one more tidbit of advice and advises us to pay attention to this one instruction, above all else.

Above all else, guard your heart,
for from it flow the wellsprings of life.

— Proverbs 4:23 

I am never 100% certain about the meaning of scripture passages, but this one feels very clear to me — guard your heart and the wellsprings of your life will flow from it. I think the wellsprings might be joy! Not such a simple message, is it, that we have “joy down in our hearts to stay.”

 

(1) The Joy of the Lord Is My Strength, written by Alliene Vale, ©️1971, Universal Music.

(2) Joy In My Heart, written by George William Cooke, 1925

Aging, Change, Christ's Passion, Faith, God's Faithfulness, Hope, Illness, Lent, Life pathways, Loss, Palm Sunday, Perseverance, Retirement

How Do You Live When You Know What’s Coming?

ABD2C8E4-5AA9-49EC-B771-A85BCDFBBD90How do you live when you know what’s coming? Jesus might have asked himself that question when the crowds were shouting “Hosanna!” and making a big deal of the fact that he was riding into town on a donkey. The Gospel of Mark tells the story well.

Many people spread their cloaks on the road, and others spread leafy branches that they had cut in the fields.

Then those who went ahead and those who followed were shouting, “Hosanna! Blessed is the one who comes in the name of the Lord! Blessed is the coming kingdom of our ancestor David! Hosanna in the highest heaven!”

Then he entered Jerusalem and went into the temple; and when he had looked around at everything, as it was already late, he went out to Bethany with the twelve.

— Mark 11:8-11 New International Version

So how do you live when you know what’s coming? Jesus went to the temple as was his custom and then set off to Bethany with his disciples. He knew what was coming, yet he did nothing very earth shattering. He sent his disciples into the city to prepare for for the Passover meal they would share. They ate the meal together, Jesus told then they would all desert him, and each one declared that they would never do such a thing.

They did. But life went on as life does. The Gospel then continues the sorrow-filled story as Jesus goes on with his disciples to a place called Gethsemane.

. . . And Jesus said to his disciples, “Sit here while I pray.”

He took with him Peter and James and John, and began to be distressed and agitated.
And said to them, “I am deeply grieved, even to death; remain here, and keep awake.”

And going a little farther, he threw himself on the ground and prayed that, if it were possible, the hour might pass from him. He said, “Abba, Father, for you all things are possible; remove this cup from me; yet, not what I want, but what you want.”

He came and found them sleeping; and he said to Peter, “Simon, are you asleep? Could you not keep awake one hour? Keep awake and pray that you may not come into the time of trial; the spirit indeed is willing, but the flesh is weak.”

And again he went away and prayed, saying the same words. And once more he came and found them sleeping, for their eyes were very heavy; and they did not know what to say to him.

He came a third time and said to them, “Are you still sleeping and taking your rest? Enough! The hour has come; the Son of Man is betrayed into the hands of sinners.

Get up, let us be going. See, my betrayer is at hand.”

Immediately, while he was still speaking, Judas, one of the twelve, arrived; and with him there was a crowd with swords and clubs, from the chief priests, the scribes, and the elders. Now the betrayer had given them a sign, saying, “The one I will kiss is the man; arrest him and lead him away under guard.”

So when he came, he went up to him at once and said, “Rabbi!” and kissed him.

Then they laid hands on him and arrested him.

— Mark 14:33-46 New Internation Versioned

So now life is earth shattering for Jesus. How do you live when you know what’s coming?

Right now in deep Lent, this is a question we probably should ask. I don’t know about you, but as for me, I know what’s coming, at least some of what’s coming. There’s aging and illness, separation from children and grandchildren, the inevitable loss of loved ones, waning energy and more loss of independence. It happens to persons of a certain age. What’s coming for me includes things that are not so positive.So how do I live when I know what’s coming?

The preacher in me wants to offer a religious platitude that minimizes the troubling reality and lifts up abiding hope. The preacher in me wants to proclaim with a great deal of passion that all will be well. The preacher in me wants to declare that whatever happens to me, God will be glorified.

How do I live when I know what’s coming?

Right smack dab through the middle of it! Living strong in the face of fear. Holding tightly to hope. Summoning my inner courage. Standing steady through the winds of change, depending on the inner resilience that has always sustained me. That’s how I live in the days I have left in this world.

But, by the way, there really is a religious word that upholds and sustains me. The preacher in me is still alive and well, so I can proclaim with great certainty the comforting truth I find in my favorite passage of scripture

You have searched me, O God,
and you know me. You know whenI sit down and when I rise;

You perceive my thoughts from afar. You discern my going out and my lying down; you are familiar with all my ways . .

You hem me in behind and before, you protect me, and you lay your hand upon me.

Such knowledge is too wonderful, too lofty for me to comprehend.

Where can I go from your Spirit?
Where can I flee from your presence?

If I go up to the heavens, you are there;
if I make my bed in the depths, you are there.

If I take the wings of the morning and dwell in the uttermost parts of the sea, even there shall your hand guide me and your right hand will hold me fast.

— Psalm 139:1-10 New International Version (paraphrased)

With that sacred promise and with the strength that has grown in me over many years, I really do know how to live when I know what’s coming. Thanks be to God.