Sometimes an old hymn — a hymn the contemporary church has discarded from its worship — can eloquently speak to the heart. There are many hymns I call hymns of the heart because they touch me so deeply. In these days of recovery when I find myself away from home and separated from friends and family, a particular old hymn comforts me. One line specifically inspires and moves me — “Shelter me safe in that haven of rest.”
The hymn, “Nearer, Still Nearer” was written by Lelia N. Morris and published in 1898. Here are two stanzas of the hymn text.
Nearer, still nearer, close to Thy heart,
Draw me, my Savior — so precious Thou art!
Fold me, oh, fold me close to Thy breast;
Shelter me safe in that haven of rest;
Shelter me safe in that haven of rest.
Nearer, still nearer, while life shall last,
Till safe in glory my anchor is cast;
Through endless ages ever to be
Nearer, my Savior, still nearer to Thee;
Nearer, my Savior, still nearer to Thee!
Finding myself away from my communities of support, I feel the separation acutely. I feel the loneliness of “apart” time. I feel a breach of relationship and the loss of my covenant community. I know it is necessary to be near Mayo Clinic in Jacksonville, Florida for this month so that the transplant team can closely monitor my care. But I miss my home and my faith community and my friends and family, and even my stray cat. I feel isolated at a time when I most need their support and encouragement. And although I strongly feel their prayers from afar, the “afar” part is not so great. I feel vulnerable and I need to feel nearer to my people.
So this hymn that expresses nearness to God is for me a timely expression of my faith and a picture of my current reality. In your contemplative time today, may you be inspired by listening to this beautiful hymn.
Today is our day of giving thanks, intentionally. Not that we should fail to give thanks every day, it’s just that today is the day we give communal thanks. Whatever community we are a part of joins hearts in expressing gratitude. There has been no shortage of calls to thanks giving from faith communities, neighborhood groups, classes, cities . . . and the list could go on and on.
“What are you thankful for?” is the common question. But I was inspired yesterday by a message from a member of my Sunday School class who posed three questions. The questions gave giving thanks a fresh meaning for me and lifted me up from Thanksgiving Day humdrum to a time of genuine contemplation about what I am truly thankful for. These are the words of her message:
Three things I invite you to consider about gratitude: what we are grateful for, what we hope to be grateful for one day, and what we are grateful for that was borne out of hardship or pain.
I am stopped in my tracks by the third question: “What are you grateful for that was borne out of hardship or pain?” Sitting in this place — post transplant — this question gave me great pause. Under the cloud of very real physical pain, I have had many moments of doubt about my decision to have a kidney transplant. Her question forced me to contemplate that in a deeper way, considering my physical pain as well as my emotional and spiritual pain.
First, it caused me to hope beyond hope that after this pain and hardship, I will be grateful for my decision. Secondly, it caused me to recall and relive the many times of pain throughout my life and the gratitude that followed. There was sadness in this contemplation and mourning for the losses I have experienced in my life. As I revisited the times of pain in my past, recalling them one by one, there was a Scripture passage from Psalm 91 that kept repeating itself in my mind.
Whoever dwells in the shelter of the Most High
will rest in the shadow of the Almighty.
I will say of the Lord, “He is my refuge and my fortress,
my God, in whom I trust.”
Surely he will save you from the fowler’s snare
and from the deadly pestilence.
He will cover you with his feathers,
and under his wings you will find refuge;
his faithfulness will be your shield and rampart.
You will not fear the terror of night,
nor the arrow that flies by day,
nor the pestilence that stalks in the darkness,
nor the plague that destroys at midday . . .
No harm will overtake you,
no disaster will come near your tent.
For he will command his angels concerning you
to guard you in all your ways;
they will lift you up in their hands,
so that you will not strike your foot against a stone.
For that divine protection, I can give deep thanks for, over my lifetime, I have found refuge under God’s wings time and time again, safe from the terror of the night.
An endearing Physician’s Assistant, Melanie, listened carefully to my symptoms, complaints, concerns and pains, taking very seriously every snippet of information I gave her. She responded with a well thought out remedy for each of my concerns. She was thorough in explaining how we would address every problem and she did so with humor and compassion. Melanie was obviously highly trained and impeccably qualified to treat transplant patients. She had many years of experience and could explain every symptom and prescribe a plan to address it. Her encouragement that the unpleasantness would pass over time was a boost to my courage. Her gift to me was increased patience and a renewal of my hope.
At the end of our session, Melanie offered a summary of the visit, a very descriptive, professional and astute summary. “You’re just having a rough patch right now,” she said, “Itchy, shaky and puffy!”
All of a sudden, I knew her words would be the title of my next blog post. “Itchy, shaky and puffy!” Perfect! Simple descriptive words — not just sterile clinical jargon — but extremely real and true. And that’s what my family and friends want most to know. What are you really feeling?
The truth is that, from the transplant itself, I am recovering well, and now with very little pain. But the effects of my high-powered immunosuppressant medications are playing havoc on my body and all its systems.
Itchy — enough to keep me awake through the night.
Shaky — along with weakness makes it hard to walk and even feed myself.
Puffy — I can’t even describe the pressure in my legs that feels like a balloon about to burst. Two times their normal size is not an exaggeration!
There you have it — a very real, true and human description of how I am faring post transplant. It is pure grace to be able to counter the simple description of my ailments with the simple words of encouragement from the Gospel of Luke:
Are not five sparrows sold for two pennies? Yet not one of them is forgotten in God’s sight. But even the hairs of your head are all counted. Do not be afraid; you are of more value than many sparrows.
— Luke 12:6-7 New Revised Standard Version (NRSV)
When all is said and done, I am beginning to believe that I really will emerge from this transplant with a stronger faith and an everlasting hope, having learned how to trust God more fully and know in my heart of God’s healing mercies. Most of all, I want to get past this transplant with words of praise to God on my lips, like the Psalmist, declaring that my mourning has turned to dancing:
Hear, O Lord, and have mercy on me;
Lord, be my helper!”
You have turned for me my mourning into dancing;
You have put off my sackcloth and clothed me with gladness,
To the end that my glory may sing praise to You and not be silent.
O Lord my God, I will give thanks to You forever.
Today will be a better day it seems. Excruciating pain has lifted for the most part. Yet, I am still facing enormous challenges — getting control of my raging blood sugar readings, reducing the swelling that is very uncomfortable, dealing with frequent changes to my medication dosages that are so necessary to prevent my body from rejecting its new kidney, eating the right foods and NOT eating the things that are strictly forbidden, adhering to a stringent regimen of washing all food properly, lathering on hand sanitizer every time I possibly can, wearing sunscreen at all times and never, ever forgetting to wear my mask.
Fortunately, I am married to a caregiver who is the “spreadsheet king” and he has my every move on his spreadsheet, including times and dosages of about 20 medications taken every day — 38 pills, 6 liquids and 6 injections. Three to four times Every week, we have appointments at Mayo Cinic starting at 6:15 am and sometimes continuing into the afternoon. It is making us very tired and overwhelmed, exhausted. There is not one thing about our lives that has not changed.
So I would not be honest if I did not admit my worries, my obsessiveness, my overthinking, my fear, my vivid imagination about all that could go wrong and my wondering what will happen tomorrow, the next day, and all the days ahead.
It is the best advice, I think, to set my focus on two words — just breathe. Just breathe, and have faith that everything will work out for the best. And it won’t hurt to ponder and lean on the many promises of God’s care and grace. These are but a few:
Philippians 4:6-7 Do not be anxious about anything, but in everything by prayer and supplication with thanksgiving let your requests be made known to God. And the peace of God, which surpasses all understanding, will guard your hearts and your minds in Christ Jesus.
Hebrews 10:23 Let us hold fast the confession of our hope without wavering, for he who promised is faithful.
Psalm 91:5-10 You will not fear the terror of the night, nor the arrow that flies by day, nor the pestilence that stalks in darkness, nor the destruction that wastes at noonday.
Isaiah 41:10 Fear not, for I am with you; be not dismayed, for I am your God; I will strengthen you, I will help you, I will uphold you with my righteous right hand.
Proverbs 3:5 Trust in the Lord with all your heart, and do not lean on your own understanding.
Jeremiah 29:11-14 For I know the plans I have for you, declares the Lord, plans for welfare and not for evil, to give you a future and a hope. Then you will call upon me and come and pray to me, and I will hear you. You will seek me and find me, when you seek me with all your heart. I will be found by you, declares the Lord, and I will restore your fortunes and gather you from all the nations and all the places where I have driven you, declares the Lord, and I will bring you back to the place from which I sent you into exile.
2 Corinthians 5:7 For we walk by faith, not by sight.
Psalm 34:4 I sought the Lord, and he answered me and delivered me from all my fears.
Joshua 1:9 Have I not commanded you? Be strong and courageous. Do not be frightened, and do not be dismayed, for the Lord your God is with you wherever you go.
It can only harm me to be worried and anxious, frightened and overwhelmed, concerned about what the days ahead will look like. It seems to me that I should just breath, all the while leaning on the everlasting arms.
On another note, please pray for me as I recover from my kidney transplant. I am so grateful that you are walking with me on this journey that often felt so frightening and is now a very difficult and stress-filled recovery time. Your thoughts and prayers mean so much. Your donations have helped us with the expense of staying in Jacksonville, near Mayo Clinic, for this month of post transplant care. If you can contribute or if you would like to read more of the story of my illness, please visit the Georgia Transplant Foundation’s website at this link:
A “Go Fund Me” page is also set up for contributions to help with the enormous costs related to the transplant, including medications, housing costs for the month we have to stay near the transplant center, uncovered medications and medical equipment, and other unforeseeable costs for my care following the transplant. If you can, please be a part of my transplant journey by making a contribution at this link
At the moment, I am literally stitched together after a kidney transplant. I know everyone likes to tell how many stitches they have, but I can’t give you that detail because I can’t see my incision well enough to count them. It’s just as well. Those stitches don’t matter all that much. They certainly don’t matter as much as being stitched together by song lyrics, book quotes, adventures . . . and moonlight. What matters most is that I am pieces of all the places I have been and all the people I have loved.
For my Sabbath yesterday, I played hymns on Pandora. As I listened for hours, I heard music that reminded me of places I have been over the years, from the single traffic light in Reform, Alabama to the rugged beauty of the Mountains of the Moon in Uganda, East Africa. And I heard hymn texts that reminded me of people I have loved, from beloved seminary professors to people I served as pastor. I sang along much of the time, singing hymn texts that ranged from “Come, Thou Long Expected Jesus” to “I’ll Fly Away,” and everything in between.
The hymns portrayed the story of my faith with Gospel songs that marked my conversion and my early years to the Great Hymns of the Church that expressed my faith in my later years. I could see myself singing in many different choirs, as a pastor leading congregational singing, as a worship leader at national gatherings, as a missionary in a mud hut and even as a teenager sitting on the back row of the church, inappropriately close to my boyfriend.
Each hymn I heard yesterday reminded me of those times and told the story of my faith journey. Indeed, I envisioned myself as one who truly is pieces of the places I’ve been and the people I have loved along the way. For at least a few hours, I was able to lay aside my physical pain, forget about my surgical stitches and give thanks that I am stitched together by hymns and people and adventures and hope on my journey of faith.
Being a part of a community of faith is one of God’s gifts to us, stitched together with sacred threads that remind us continually who we are. Being stitched together as a faith community is beautifully described in this passage from the book of Acts.
They devoted themselves to the apostles’ teaching and to fellowship, to the breaking of bread and to prayer. Everyone was filled with awe at the many wonders and signs performed by the apostles. All the believers were together and had everything in common. They sold property and possessions to give to anyone who had need. Every day they continued to meet together in the temple courts. They broke bread in their homes and ate together with glad and sincere hearts, praising God and enjoying the favor of all the people.
— Acts 2:42-47
Interesting — and one of God’s very special gifts — that when we are stitched together, we discover that we are whole.
I met this kind person through a group of clergywomen called RevGalBlogPals. She is a spiritual director from British Columbia. Through the RevGalBlogPals Facebook group, she happened upon parts of my transplant journey in my blog posts. She began praying for me. Then she offered me the gift of spiritual direction as I pass through this complicated time in my life.
It has been several years since I worked with a spiritual director, so I was very humbled and thankful to hear from her. These were the words of lovingkindness she wrote to me in our first session.
May you feel the gentle touch of Spirit in this session.
May you know that I am holding you in healing Love.
May you be reminded of your worth and strength…
As you rest.
~ This is spiritual direction when pain does not allow for words.
On the day I received her message, it was so true that pain did not allow for words. The assault on my body was unspeakable on that day. I remember when many years ago my husband’s cardiologist came into his hospital room a few days after his heart surgery. The cardiologist said this: “Let’s look at this terrible thing we’ve done to you.”
His words resonated with me post transplant when, in the throes of struggle and pain, I definitely was looking at the terrible thing they had done to me. I could not quite see a brighter, pain-free future. I could only focus on the physical systems that were in complete disarray after the transplant. It did not help when medical staff told me it was all normal. The way I was experiencing it all was far from normal.
I wondered if I would ever live “normal” again. Or if perhaps I would live into a new normal of life after receiving a transplanted organ. I was not sure, and definitely not confident, that all systems would levelize into something I could tolerate. My spiritual director’s wisdom knows that to have physical normalcy, I must also seek emotional and spiritual normalcy. That would mean healing wholly — from the outer visible body to the inner invisible one. It would mean transformation. It would mean living my life while watching constantly and diligently for any sign that something was physically wrong.
When my spiritual director suddenly appeared, I knew that she would help me explore my spiritual state, entering into community with me and pointing to the healing I could not yet see.
Thanks be to God for the beloved community she has offered me, community that forms in unexpected places, in unexpected times, just when I needed community the most.
I have just reached a milestone — a million seconds. My kidney transplant started the clock on Tuesday, November 12, 2019. Today it is a million seconds later. I will remember those million seconds as a time of fear and faith, laughter and tears, rest and painful sleeplessness. I will remember a million seconds filled with hard things, the pain of a large incision spreading halfway across my abdomen, and swallowing pills, lots of pills.
I may one day see those million seconds as hidden secrets, secrets hidden from me by pain and by my body’s struggle to regain some normalcy. I may in time look at those million seconds with glittering eyes and see them as the magic they were. But today I can just share with you what I experienced in a million seconds that began on a Tuesday — November 12th to be exact.
I will remember a million seconds of so many strange things happening to my body and the numerous assaults my body endured. I will remember a million seconds of awe in knowing that a kidney was removed from a living donor at Mayo Clinic in Rochester, Minnesota and hand carried by a doctor to me, to Mayo Clinic in Jacksonville, Florida — adistance of 1,115 miles “as the crow flies.”
I will remember a million seconds that began when my surgeon took a picture of the kidney, brought the photo on her phone to my room to show it to me, and said, “This is a beautiful, perfect kidney for you.” She planted that kidney, tucked it carefully inside me, took a photo of the incision and about five hours later came to my room to show me a picture she took on her iPhone of a large incision, impeccably sutured.
I will not forget those million seconds of the prayers of my friends, doctors and nurses caring for me and family members hovering over me with concern and relief.
I will not forget the hymn that came to my mind in the long, sleepless nights in the hospital — a million seconds of leaning on God’s everlasting arms.
What have I to dread, what have I to fear,
Leaning on the everlasting arms?
I have blessed peace with my Lord so near,
Leaning on the everlasting arms.
Leaning, leaning,
Safe and secure from all alarms;
Leaning, leaning,
Leaning on the everlasting arms.
A million seconds have changed my life, while all the while, I was leaning on the everlasting arms. It was a million seconds of holy ground, sacred space. Yet I hardly noticed it as magic or miracle as the pain of my humanity took center stage.
Yes, I focused on suffering, physical pain, worry, concern, tears. Instead, I might have focused on the hidden secrets and witnessed the miracle of holy ground inside a hospital room. I could have had a million seconds of miracle, but instead I experienced a million seconds of the raw and real humanity of suffering. In some ways, a million seconds of transformation were lost to me as I invited unfaith into my room.
I may not be able to speak of joyful things today. The physical pain I am experiencing is far too strong, covering me with just a little bit of despair. More than one of my good friends told me in the past few days that I am strong. I am not and, thankfully I don’t have to be because the friends that surround me are being strong for me. They are calling on the minuscule strength I do have and bringing it into view for me. They have told me joyful things when I could not name joyful things for myself. In the process of loving me, my friends call out to the joy and strength that is in me to make itself known. And on top of that, they allow me, without judgement, to be where I am and feel what I feel.
So although I may not be able to speak of joyful things right now, I know that you have already tucked joyfulness into the recesses of your heart. I may not have much hope to send to you today, but you have hope in abundance and it breathes over your spirit during times of courage and times of fear, times when you feel certainty and times when you feel disillusioned. Out of your stores of faith, you encircle me and breathe hope into my spirit . . . and strength and joy.
For that, I am most grateful. And I am grateful that when I am weak, God is my strength. When I am joyless, God covers me with joy. I believe this by faith (a smidgen of mustard seed faith) in those times when I cannot experience those comforts within me, times like this present time of struggle and recovery.
I’ll leave you with these words of comfort that you already know so intimately, words that I also know intimately, but that I need to hear anew today.
And God, the giver of all grace, who has called you to share His eternal glory, through Christ, after you have suffered for a short time, will make you perfect, firm, and strong. — 1 Peter 5:10
For our light and temporary affliction is producing for us an eternal glory that far outweighs our troubles. — 2 Corinthians 4:17
Though I cannot manage to speak of joyful things today, the writers of 1 Peter and 2 Corinthians most definitely can!
I can do this hard thing, this recovery from a kidney transplant. But sometimes I need to shed some tears about it all. Tears do not come out of weakness. In fact, tears are the mark of power. Called “the soap of the soul,” tears can help diminish the angst my soul clings to so tightly. Unfortunately, I tend to fight back tears as if they will hurt as they slip down my cheeks. I also nurse the irrational desire to not let anyone see my tears. After all, someone might consider them a sign of my weakness.
Yet, God has another thought about our tears. God counts our tears, keeps up with them, gathers them up and stores them in a bottle. I can imagine the scene of a loving God gently catching every tear and preserving it as a precious elixir worth saving.
Still I avoid weeping at all costs, portraying a false, less-than-honest strength — especially if someone might see.
Today, I am so aware that if I could just cry, the hard time I am going through would feel easier. If I could cry, my tears would cleanse my heart and help minimize my physical, emotional and spiritual pain. If I could just let my tears fall, I would be reclaiming my power.
The truth is that I did not fully understand how hard it would be to endure a kidney transplant and the very, very difficult aftercare regimen. Nor could I have ever imagined the range of emotions I would experience. This is one of life’s hard things.
Last night though, a dear friend sent me a video of a song she chose just for me, just for this moment of my life. I had never heard the song before, but it was exactly what I needed to hear. A mesmerizing tune and simple lyrics written and performed by Carrie Newcomer, “You Can Do This Hard Thing” brought me to tears, tears that really needed to flow.
You can do this hard thing.
You can do this hard thing.
It’s not easy I know,
But I believe that its so.
You can do this hard thing.
My faith tells me that I really can do this hard thing, although most of the time I don’t feel that I can. The friends and family who surround me with love remind me that I can. My heart tells me I can do this, but my rational mind tries to convince me that I cannot. I am reminded by the hymn writer that grace for this hard thing comes from God . . .
God giveth more grace when the burdens grow greater;
He sendeth more strength when the labors increase;
To added afflictions He addeth His mercy,
To multiplied trials, His multiplied peace.
When we have exhausted our store of endurance,
When our strength has failed ere the day is half done,
When we reach the end of our hoarded resources
Our Father’s full giving is only begun.
So perhaps it does require our tears, our lament that humbles us before our God of grace. The writer of the Book of James seems to suggest that grieving and weeping brings God near and that our mourning actually strengthens us to live through hard things.
God gives all the more grace . . .
Submit yourselves therefore to God . . .
Draw near to God, and he will draw near to you . . .
Lament and mourn and weep.
Let your laughter be turned into mourning and your joy into dejection.
— From James 4 (NRSV)
It doesn’t make much sense that mourning is a good thing, that flowing tears actually cleanse the soul. But I need to see things this way: Life brings changes — hard changes sometimes. Along with the miracle of my kidney transplant comes the end of one season of life and the advent of a new season of life. While I do celebrate the transplant and the ways it will be life-giving for me, I must also grieve the loss of my previous life that had become so comfortable, so easy.
I will call out to my buried tears. I will open up my heart’s pain, grieve my losses and let my tears fall freely down my cheeks. It seems to be the best way to make sure I can do this hard thing.
Today, I am singing in my mind a sacred hymn that often speaks hope to me. The
text was written by William Cowper (1731-1800) and the music by William Howard Doane (1832-1915). In the darkness of the past week, I have been surprised by light.
Sometimes a light surprises
The child of God who sings;
It is the Lord who rises
With healing in His wings:
When comforts are declining,
God grants the soul again
A season of clear shining,
To cheer it after the rain
In holy contemplation
We sweetly then pursue
The theme of God’s salvation,
And find it ever new;
Set free from present sorrow,
We cheerfully can say,
Let the unknown tomorrow
Bring with it what it may.
Tomorrow can bring us nothing,
But God will bear us through:
Who gives the lilies clothing
Will clothe His people, too:
Beneath the spreading heavens
No creature but is fed;
And God Who feeds the ravens
Will give His children bread.
Though vine nor fig tree neither
Their wonted fruit should bear,
Though all the fields should wither,
Nor flocks or herds be there
Yet, God the same abiding,
God’s praise shall tune my voice;
For, while in Him confiding,
I cannot but rejoice.
It is so true that “sometimes a light surprises the child of God who sings.” The surprise is almost magic. Surely the light is miracle, and I thank God for the miracle of this new day. The miracle, I think, is that I am able to look at this day in a way that leads to gratitude for life.
I am determined that this will not be a day I describe by pain, but that I would declare this day a day of healing. Today, I want to lean into healing, not suffering — faith, not fear. I am convinced that this is God’s desire for me.
There is no doubt that I have walked through darkness in the past week. It is also my truth that light really does shine out of dark places. My pondering light and darkness this morning brings up a Scripture text I have leaned on many times in my life. I love the New Century Version of this text.
God once said, “Let the light shine out of the darkness!” This is the same God who made his light shine in our hearts by letting us know the glory of God that is in the face of Christ.
We have this treasure from God, but we are like clay jars that hold the treasure. This shows that the great power is from God, not from us.
We have troubles all around us, but we are not defeated. We do not know what to do, but we do not give up the hope of living. We are persecuted, but God does not leave us. We are hurt sometimes, but we are not destroyed.
— 2 Corinthians 4:1-11 New Century Version (NCV)
How accurately this text describes my past few days! How true it is that I have not known what to do about the pain and suffering, yet I refuse to “give up the hope of living.” This is as it should be. This is God’s desire for us — to never give up the hope of living and to cling to the good hope that light really does shine out of darkness.
Sometimes a light really does surprise us when we sing. Singing beats weeping every time. Singing drives out darkness. I have heard often that only light can drive out darkness and I believe that truth. In fact, when I find myself in the middle of darkness, I am convinced that darkness is precisely the place where I am able to see the light at its brightest.
Today Is a troubled day for me. I need to know God as “my ever present help in time of trouble” on this day of kidney transplant aftercare that began early this morning. Being in the Mayo Clinic lab by 6:30 is not so gentle a way to treat a person with a huge, painful incision! On the way to Mayo Clinic, bumps and potholes in the road caused sharp pain. Walking the hallways at Mayo Clinic required far more energy than I currently have. I am weak and shaky, struggling with significant pain, and suffering from the side effects of very potent medications.
The medical visits will end around 2:00 pm today. We hoped to be able to rest until the next medical appointments on Wednesday. But the transplant doctors need to repeat my blood tests early tomorrow. They made some significant changes to my medications to try to address some concerns they have about my kidney function, excessive incision pain, blood sugar and fluid retention.
It occurred to me today, that in some ways, all of the inflexible after surgery care and the daunting medication regimen seems as if it is not at all about me; it’s about the kidney! It’s all about the kidney!
I can live with that if I can remember that God cares for me, for every part of me, and of course, for the new kidney. But my hope rests on the grace-giving God who also cares for the whole of me — what’s going on with me physically, emotionally and spiritually.
A comforting hymn text about God’s care has lifted me up into hope at various times in my life. “Day by Day, and with Each Passing Moment” was written by a young Swedish woman, Carolina Sandell Berg. Like the Psalmist, Berg learned early in life to trust in God’s strength to help her overcome times of suffering. She learned that when pain and tragedy strike, God may use that experience to deepen our faith.
When Carolina was 26-years old, she experienced a tragedy which profoundly affected her life. As she and her father crossed a Swedish lake, the ship suddenly lurched, and before her eyes, her father was thrown overboard and drowned. Like the Psalmist who gave us a strong affirmation with these words, “God is my refuge, an ever present help in time of trouble,” Carolina Berg found hope in God day by day.
Although my present situation is very different from her tragedy, I am learning all over again about how hope and faith work for me. This is my paraphrase of Carolina Sandell Berg’s wonderful hymn:
Day by day and with each passing moment,
Strength I find to meet my trials here;
Trusting in God’s kind and wise bestowment,
I’ve no cause for worry or for fear.
God whose heart is kind beyond all measure
Gives unto each day what She deems best —
Lovingly, it’s part of pain and pleasure,
Mingling toil with peace and rest.
Every day the God of love is near me
With a special mercy for each hour;
All my cares God’s love will bear, and cheer me,
God whose name is Counselor and Power.
The protection of God’s child and treasure
Is a charge that on Herself She laid;
“As thy days, thy strength shall be in measure,”
This the pledge to me She made.
Help me then in every tribulation
So to trust Thy promises, O Lord,
That I lose not faith’s sweet consolation
Offered me within Thy holy Word.
Help me, Lord, when toil and trouble meeting,
Ever take, as from a mother’s hand,
One by one, the days, the moments fleeting,
‘Till I reach the promised land.
On days like this one when I feel weary and weak, when I experience pain and need an extra measure of compassionate care, I know I can look to God who is “my ever present help in time of trouble.” And I know that God, who is both father and mother to me, will walk beside me day by day, every day, through every passing moment.
On another note, please pray for me as I recover from my kidney transplant at Mayo Clinic in Jacksonville, Florida. I am so grateful that you are walking with me on this journey that often felt so frightening and is now a very difficult recovery. Your thoughts and prayers mean so much. Your donations through the Georgia Transplant Foundation have helped us get very close to our goal. The Foundation will match donations dollar for dollar up to $10,000, and you have already helped us raise $9,015. If you are able, please help us get to the $10,000 matched amount. We are almost there. If you can contribute or if you would like to read more of the story of my illness, please visit the Georgia Transplant Foundation’s website at this link:
A “Go Fund Me” page is also set up for contributions to help with the enormous costs related to the transplant, including medications, housing costs for the month we have to stay near the transplant center, uncovered medications and medical equipment, and other unforeseeable costs for my care following the transplant. If you can, please be a part of my transplant journey by making a contribution at this link
Today is not such a good day for me. I am enduring a great deal of discomfort, and what seemed like light for me a week ago has diminished, at least for now. Pain can certainly bring darkness into the soul, and suffering, which is much deeper than physical pain, also assaults the psyche. One can wonder whether or not the light will ever return, whether pain and suffering will subside.
I must admit I am wondering that today, with my faith and hope feeling a bit shaky. Yet, quite often I stumble upon grace-filled truth just when I need it most. Today grace-filled truth seemed to come out of nowhere to teach me a fresh lesson about pain and suffering, light and darkness.
From the Facebook page, “A Sanctified Art” I found this nugget of comforting truth.
Light can travel endlessly through a vacuum. Light waves won’t diminish no matter how far they have to travel. Can you imagine that? Perhaps that’s God’s nature and constant posture — endlessly traveling through time and space just to reach us.
For this day it is such a blessing to know that light pierces through the darkness and that, no matter how far light travels, it does not diminish.
Thanks be to God.
On another note, please pray for me as I recover from my kidney transplant at Mayo Clinic in Jacksonville, Florida. I am so grateful that you are walking with me on this journey that often felt so frightening. Your thoughts and prayers mean so much. If you would like to rea the story of my illness, please visit the Georgia Transplant Foundation’s website at this link:
A “Go Fund Me” page is set up for contributions to help with the enormous costs related to the transplant, including medications, housing costs for the month we have to stay near the transplant center, and other unforeseeable costs for my care following the transplant. If you can, please be a part of my transplant journey by making a contribution at this link:
Transplant Day Four was a blur. There are no words to adequately describe the volume of information we had to digest just to know how to protect this new kidney. So with all the education we had to learn, both Fred and I are on overload. The pain continues, and hopefully the healing.
But hovering over all the physical and emotional pain are the prayers of the people — my people — my dear friends and family members who are holding hope up high so I can see it. Their love and their compassionate concern is grace for me.
I have few words of my own today, but this prayer shared by Joanna Harader speaks exactly what I need God to hear from me today.
Holy One,
This day may I know
Your health in my body;
Your enlightenment in my mind;
Your grace in my missteps;
Your patience in my frustrations;
Your inspiration where I am stuck
And your tranquility where I need to slow down and rest.
This day may I
Breathe each breath with gratitude,
See each color with wonder,
Hear the hum of the Divine beneath the noise,
Feel your solid presence with each step I take.
Let me live out of your joy
And within your power.
Amen.
Rev. Joanna Harader serves as pastor of Peace Mennonite Church in Lawrence, KS, and blogs at SpaciousFaith.com.
Image credit: Starry Night Over the Rhône (detail), Vincent van Gogh, 1888, Musé
November 14, 2019
Kidney Transplant Day Two
What I can say definitively about Day Two of my kidney transplant is that it was infinitely better than Day One! Sometimes a little mayhem comes right on the heels of miracles. So it was with me. The hard days of recovery are not over, but life’s hard days never are.
So here’s my plan, hatched out of a little touch of Day Two despair.
Today was very rainy today in “sunny Florida.”
Tonight the sky is dark without a star in sight, and I am reminded that physical darkness can so easily twist and turn into something much worse — emotional and spiritual darkness.
I don’t need to get to that place. I am counting on your prayers to help me remember that stars are still in the sky even on the darkest nights. We simply cannot see them for a time.
Sarah Williams has written some wonderful words in her book, Twilight Hours: A Legacy of Verse. These two lines have led me through many a dark night.
Though my soul may set in darkness, it will rise in perfect light;
I have loved the stars too fondly to be fearful of the night.
As I lean again into the poem’s message, I’ll remember that Transplant Day Three is just minutes away.
November 12, 2019 — the day of my kidney transplant
I’m welcoming twilight today, that space created for me by a gifted anesthesiologist.
It is, I imagine, a magical thing that gathers all the worries, fears, disappointments of illness and tucks them neatly into a glittering silver pouch.
The twilight is a good feeling, a sense of new well-being in the all places where my feelings and emotions live.
It is a comfort and a grace.
It is a relief, a blessed sense that all is well.
It is an alchemist holding the silver pouch in her hands and flinging it into the heavens, each fear and worry joining the stars in the night sky.
And as dawn breaks — a new dawn — I welcome a new life, a different life, a gift of life that feels like hope.
On another note, please pray for me as I look toward my kidney transplant today at Mayo Clinic in Jacksonville, Florida. I am so grateful that you are walking with me on this journey that often felt so frightening. Your thoughts and prayers mean so much. If you would like to rea the story of my illness, please visit the Georgia Transplant Foundation’s website at this link:
A “Go Fund Me” page is set up for contributions to help with the enormous costs related to the transplant, including medications, housing costs for the month we have to stay near the transplant center, and other unforeseeable costs for my care following the transplant. If you can, please be a part of my transplant journey by making a contribution at this link
Around 3:00 am this morning, I was awake and alert, having tossed and turned for hours, wishing for daybreak. I was also fasted and prepared for medical tests. But before I tell you about this day’s fasting, I need to reach back and call up some of my memories of other times. While wide awake in bed, I thought about some of the fasting times I have experienced, each a singular blessing making way for sacred space.
Fasting was a part of my early childhood. Being a Greek Orthodox child with a religiously devout Yiayia (grandmother), I learned early in life about fasting. Even though I was only 8-years old, Yiayia adamantly believed I was old enough to memorize prayers from the liturgy and recite them — in Greek. And a part of her plan was designed to prepare me for Holy Communion. I must give her some good-grandmothing credit — she did have a fasting experience for me that was age-appropriate, meaning it was not as long a fasting time as the adults observed and certainly not as stringent. No meat, of course, but some laxity on dairy and liquids because I was always an orange juice child that needed to drink a lot.
Yiayia accommodated my need for plenty of juice and chocolate milk. Still, I thought I might starve before my fast was over and I received the wine and, finally, the little square of communion bread that I scarfed down. I am pretty certain, though, that I did not fully embrace this sacred mystery of prayer, fasting and the sacrament of Holy Communion.
Years passed and young adult fasting times came in times of deep angst. There were troubled times when the only hope I thought I had came through prayer and fasting. Looking back on that time, I realize that I experienced just a glimpse of the meaning behind a fast. More awareness and appreciation of the sacred mystery would come much later in life.
Maturity and age created in me a seeking spirit that longed for deep meaning. I remember so vividly my time of fasting for my profession of vows before entering the novitiate of the Order of Ecumenical Franciscans. The occasion happened in the desert of Albuquerque, New Mexico, quite an appropriate setting for my introduction to a contemplative life. Dry, expansive desert and big skies that went on forever captured my imagination. It occurred to me at the time that I was experiencing just a tiny glimmer of desert spirituality. This fast in the desert was really the first time I immersed myself fully in the sacred mystery of fasting.
Now back to this day while waiting for daybreak after a night of tossing and worrying. This fasting morning was not religious at all, but necessary for information the kidney doctors needed from the 30 vials of blood The Mayo Clinic phlebotomist retrieved from my flimsy vein.
But come to think of it, today’s fasting may be the most sacred of all because it leads to the mystery and science of a kidney transplant. When a donor comes forward willing to give a gift of life from his or her own body, that feels very much like sacred mystery.
God orchestrated the entire experience. And by the way, God knows all about my tossing and turning in the wee hours of this morning. God understands my anxiety and fear. God understands the emotional place of anticipating a kidney transplant after five years of waiting.
I have always loved the imagery of this scripture verse written by the Psalmist. Today seems like a good day to ponder it.
You have kept count of my tossings;
put my tears in your bottle.
Are they not in your record?
— Psalm 56:8 (NRSV)
Tomorrow is the day. If all goes well, tomorrow I will get a new kidney. If for some medical reason, the transplant does not happen, I still know and understand the sacred mystery that God keeps count of my tossings and saves my tears in a bottle. And that’s enough for me.
On another note, please pray for me as I look toward my kidney transplant tomorrow at Mayo Clinic in Jacksonville, Florida. I am so grateful that you are walking with me on this journey that often felt so frightening. Your thoughts and prayers mean so much. If you would like to rea the story of my illness, please visit the Georgia Transplant Foundation’s website at this link:
A “Go Fund Me” page is set up for contributions to help with the enormous costs related to the transplant, including medications, housing costs for the month we have to stay near the transplant center, and other unforeseeable costs for my care following the transplant. If you can, please be a part of my transplant journey by making a contribution at this link
Sometimes I am inspired by the strangest things. This time the inspiration centers around Mexican-born, American-educated artist Enrique Chiu. While the Trump administration remains intent on separating us from our Mexican neighbors with a border wall, Enrique Chiu is leading a cadre of bi-national volunteer artists to paint a mile-long mural on the border fence. The reason? To celebrate unity and peace. Their intent is to turn the fence from a dividing wall into a work of art that spreads a message of hope to families that cross the border.
Enrique Chiu calls the project, “The Mural of Brotherhood” (and “Sisterhood” emphasis mine), and enlisted more than 2,600 volunteers to paint uplifting messages on the Mexico-facing side of the U.S.-owned fence. The goal is to create an artistic riposte to Trump’s nationalist and anti-immigrant politics.
Chui has a very personal motivation for the project. When he was eight, he crossed that border with his mother and lived in Los Angeles for a year without legal status. He grew into a renowned artist and envisioned this project, which he dedicated “to all those people who are looking for a better life. Who take enormous risks. Or those have been deported and are separated from their families.”
That inspires me. Creative gifts used to make a statement; Volunteer work offered to encourage; Personal conviction making a statement about unity, peace and justice . . . through an in-your-face act of resistance to divisive, oppressive policy.
Godspeed, Enrique. May God bless the gift of inspiration you share.
On another note, please pray for me as I look toward my kidney transplant currently scheduled for November 12th at Mayo Clinic in Jacksonville, Florida. I am so grateful that you are walking with me on this journey that often felt so frightening. Your thoughts and prayers mean so much. If you would like to rea the story of my illness, please visit the Georgia Transplant Foundation’s website at this link:
A “Go Fund Me” page is set up for contributions to help with the enormous costs related to the transplant, including medications, housing costs for the month we have to stay near the transplant center, and other unforeseeable costs for my care following the transplant. If you can, please be a part of my transplant journey by making a contribution at this link
I have asked myself these questions before — many times before. I have asked these questions when teaching classes and writing my blog. I have asked these questions in a sermon — actually multiple sermons. So one might expect that, through my sermon preparation through Biblical study and other research, I might have found an answer by now. I have not. Because my finding the answer is as complicated as the myriad places of brokenness i see in the world around me.
Of course, I have to pay attention to the image of a hungry child, a refugee family at the border, entire African villages that subsist without clean water, the violent streets in cities across the United States, the mother protecting her children from abuse and herself from domestic violence, racially motivated hate crimes that terrorize, the climate crisis that to some is so real and to others just a hoax, the active shooters that have terrified school children and threatened life at many other places where people are vulnerable. I can continue this list into perpetuity.
But then I have to acknowledge the more insidiously evil side of the world’s brokenness — not the actual broken places, but the injustices that create them. I have to be woke to the societal and political forces of greed that deny complicity in the oppression of the most vulnerable among us.
So when I ask myself the question, “What do I have to give in a broken world?” I am really asking if I will: 1) personally tackle a person’s specific need; 2) seek radical change of the societal and political forces that cause oppression; 3) become both a political activist and a compassionate hands-on Samaritan; or 4) engage in a contemplative life by getting in touch with the mystic inside that prays and longs for an end to every form of brokenness.
If I were a mystic, if could pray away the brokenness, I would most assuredly enter my prayer closet and do so. Admitting to being a mystic, though, is slightly uncomfortable. I’m not completely sure what a mystic is or what a mystic does. And isn’t being a mystic reserved for monks and nuns?
Richard Rohr is my go-to person on the duality of action and contemplation. One can find in his meditations —every day — the inseparable link between our compassionateacts and the inner spiritual work that drives us. Matthew Fox writes:
Deep down, each one of us is a mystic. When we tap into that energy we become alive again and we give birth. From the creativity that we release is born the prophetic vision and work that we all aspire to realize as our gift to the world. We want to serve in whatever capacity we can. Getting in touch with the mystic inside is the beginning of our deep service.
“Our gift to the world,” he writes. And all around that “gift,” he lifts up prophetic vision, the energy to come alive, touching our inner mystic and engaging in deep service to people and places of deep need. I can never broach this subject of a broken world without revisiting the Jewish concept known as Tikkun olam – “repair the world,” that manifests itself in acts of kindness performed to perfect or repair the world. The phrase — found in the Mishnah, a body of classical rabbinic teachings — is often used when discussing issues of social policy, insuring compassionate remedies to those who may be at a disadvantage.
As for me . . . I really do want to touch my inner mystic, to enter into a silent, deep inner space that compels me to serve humanity. I also want to enter a place of tikkun olam. I want to repair the world and tangibly care for the persons who have need. Is it even possible to do both? Isn’t it imperative for a follower of Jesus to do both? Is it not because of the hope of the Good News in Christ that I must be about ministries of compassion and justice?
It seems pretty clear when reading the words of Jesus that caring for broken persons in a broken world is most certainly a compassionate imperative.
When the Son of Man comes in his glory, and all the angels with him, then he will sit on the throne of his glory. All the nations will be gathered before him, and he will separate people one from another as a shepherd separates the sheep from the goats, and he will put the sheep at his right hand and the goats at the left.
Then the king will say to those at his right hand, “Come, you that are blessed by my Father, inherit the kingdom prepared for you from the foundation of the world; for I was hungry and you gave me food, I was thirsty and you gave me something to drink, I was a stranger and you welcomed me, I was naked and you gave me clothing, I was sick and you took care of me, I was in prison and you visited me.”
Then the righteous will answer him, “Lord, when was it that we saw you hungry and gave you food, or thirsty and gave you something to drink? And when was it that we saw you a stranger and welcomed you, or naked and gave you clothing? And when was it that we saw you sick or in prison and visited you?”
And the king will answer them, “Truly I tell you, just as you did it to one of the least of these who are members of my family, you did it to me.”
— Matthew 25:31-40 New Revised Standard Version (NRSV
It’s just downright confusing and complex. Bottom line is this: I have no idea how to repair the world or how to get in touch with my inner mystic. But I also do not want to be permanently consigned to the goat-group mentioned in this Gospel text! I would rather struggle to figure out what I must do to care compassionately for my brothers and sisters and to get in touch with the contemplative mystic that makes me come alive.
Sound advice comes from a plethora of good and wise people. This time Howard Thurman gets the last word:
Don’t ask what the world needs. Ask what makes you come alive and go do it, because what the world needs is people who have come alive.
May God make us people who have come alive. Amen
On another note, please pray for me as I look toward my kidney transplant currently scheduled for November 12th at Mayo Clinic in Jacksonville, Florida. I am so grateful that you are walking with me on this journey that often felt so frightening. Your thoughts and prayers mean so much. If you would like to read the story of my illness, please visit the Georgia Transplant Foundation’s website at this link:
A “Go Fund Me” page is set up for contributions to help with the enormous costs related to the transplant, including medications, housing costs for the month we have to stay near the transplant center, and other unforeseeable costs for my care following the transplant. If you can, please be a part of my transplant journey by making a contribution at this link
Mother of God, Protectress of the Oppressed. Iconography by Kelly Latimore.
On many fronts, I am troubled today by the appointment of Paula White as head of the White House’s Faith and Opportunity Initiative, a successor to previous administrations’ faith-based office that coordinates outreach to religious communities. The news reports point out that she is neither seminary trained nor qualified to hold this position, and yet the president identifies her as his “pastor.” I cannot help but wonder: When did it become acceptable to evangelicals to tolerate a woman as their president’s pastor?
It appears that Donald Trump has employed a Pentecostal televangelist from Florida, an outsider whose populist brand of Christianity mirrors his own conquest of the Republican Party. She is in many ways a quintessentially Trump figure: a television preacher, married three times, lives in a mansion.
And like her president, Ms. White has survived accusations of financial misconduct and ethical improprieties. Among Christians, she is a divisive figure because of her association with the belief that God wants followers to have wealth — commonly called the prosperity gospel. This theological perspective is highly unorthodox, and is also considered heretical by many Christians.
The Rev. William J. Barber II, who organized the Moral Mondays protests in North Carolina and who spoke at the Democratic National Convention in 2016, calls White’s appointment “a very ominous sign” and signals that “Christian narcissism” has come into the White House. He said this:
The so-called prosperity gospel is a false gospel that can be compared to the theology that justified slavery because of economic prosperity. It is an attempt to interpret the gospel to be primarily about personal wealth and personal power, which is contrary to the theology of Jesus where the good news was always focused on caring for the poor, the least of these, the stranger, the sick.
I just spent five paragraphs trying to show Paula White’s face to the world when what is infinitely more needful is showing Christ’s face to the world. With that in mind, I feel compelled to switch focus to the theology of Jesus that insists upon caring for the oppressed.
Some of you may know that I am an iconographer and one who is very interested in the theology of icons and their call to holy introspection. An iconographer colleague of mine gave me this wise counsel:
Look at the eyes first and see the light that shines through them. Stand reverently and quietly before the icon until the image speaks to you.
Icons hold a spiritual effect, a history and a message. So in thinking about caring for the oppressed, I turn to two icons depicting the Mother of God and her Son.
The first, an icon by Kelly Latimore, is Mother of God, Protectress of the Oppressed. Russian Christians for centuries have called Mary the Protectress of the Oppressed. While some icons embrace traditional forms, this one has been re-imagined. It reflects current political morés related to the treatment of refugees and migrants at our southern border. Christ has assured us that He will always be found among the poor and oppressed. In that light, this depiction of Mary is a refugee mother and child behind the fence our government has erected to separate them from “God-fearing Americans.”
Mother of the Streets. Iconography by Br. Robert Lentz, OFM
The second icon, written by Brother Robert Lentz, OFM, is Mother of the Streets. Each year, larger numbers of homeless people live in the streets of our cities — jobless workers, battered women, the untreated mentally ill, or simply those too poor to get by. They tend to be “invisible” to us. This icon depicts the Mother of God as the mother of those on the streets. Her garments, and those of her Son, are covered with jewels and gold decoration, making manifest the hidden worth and dignity of street people, who are living icons of God. In 1984 the Catholic bishops of the U.S. declared, “To turn aside from those on the margins of society, the needy and the powerless, is to turn aside from Jesus. Such people show His face to the world.”
It matters whose face we show to the world. It matters whose face we see. We can choose to “see” the Donald Trumps and Paula Whites of the world, or we can turn our eyes on Jesus. It matters whose face we “see!” And it really matters whether or not we will be found in the city streets, on the border and at the fences, at the margins of society where so much oppression holds sway. It really matters whether or not our every day, holy acts of compassion show Christ’s face to the world.
May God create in us compassionate hearts. Amen.
On another note, please pray for me as I look toward my kidney transplant currently scheduled for November 12th at Mayo Clinic in Jacksonville, Florida. I am so grateful that you are walking with me on this journey that often felt so frightening. Your thoughts and prayers mean so much. If you would like to read the story of my illness, please visit the Georgia Transplant Foundation’s website at this link:
A “Go Fund Me” page is set up for contributions to help with the enormous costs related to the transplant, including medications, housing costs for the month we have to stay near the transplant center, and other unforeseeable costs for my care following the transplant. If you can, please be a part of my transplant journey by making a contribution at this link
Stellar Babies: Infant stars are glowing gloriously in this infrared image of the Serpens star-forming region, located approximately 848 light-years away in the Serpens constellation. NASA
Who am I? Of course, I know the origin of my physical body, but from where did my soul emerge? How did it become what it is, what it feels, what it knows? Where were my dreams born, and the longings of my being? How do I awaken to all that I am meant to be?
The point is that our souls must be tended and nourished, but in order to do that, we must know them. We must know what our souls need to thrive and we must know intimately the Healer of our souls. I want to share a beautiful song for your time of meditation, Healer of My Soul by John Michael Talbot. Find a comfortable place and spend a few moments in silence before playing the video:
I often wonder about my soul and what it holds so deeply. I search it and find it impossible to reach down far enough to understand the wonder that is the soul. For years I have heard the admonition, “Search your soul,” I always wondered how exactly to do that. What spiritual discipline might help me search the depths of my soul? I remember the words of one of my favorite Psalms.
O Lord, you have searched me and known me!
You know when I sit down and when I rise up;
you discern my thoughts from afar.
You search out my path and my lying down
and are acquainted with all my ways.
Even before a word is on my tongue,
behold, O Lord, you know it altogether.
You hem me in, behind and before,
and lay your hand upon me.
Such knowledge is too wonderful for me;
it is high; I cannot attain it.
Where shall I go from your Spirit?
Or where shall I flee from your presence?
If I ascend to heaven, you are there! If I make my bed in Sheol, you are there!
If I take the wings of the morning
and dwell in the uttermost parts of the sea,
even there your hand shall lead me,
and your right hand shall hold me.
— Psalm 139:1-10 (ESV)
What stunning words the Psalmist uses to describe how intimately we are known by God. Our challenge is discovering how to know ourselves. And so we plumb the depths of our being, seeking to know what dwells in the soul so that we might live life based on the soul’s longing.
It is true that this soul thing is a mystery, always eluding us and calling us to deeper understanding. And so I come full circle from the beginning of this post? Who am I? And what is my soul’s deepest yearning? Does my soul guide my life? I recently stumbled upon these words:
We are slowed down sound and light waves, a walking bundle of frequencies tuned into the cosmos. We are souls dressed up in sacred biochemical garments and our bodies are the instruments through which our souls play their music.
— Albert Einstein
I love the last thought that our souls play their music. Would that we lived and moved always to our soul’s music! Would that we might see our music creating life and hope and new dreams? When our souls play their music, everything is transformed — within us and around us. That soul music is our gift to the world.
On another note, please pray for me as I look toward my kidney transplant as early as November 6th. I am grateful that you are walking with me on this journey that often felt so frightening. Your thoughts and prayers mean so much. If you would like to read the story of my illness, please visit the Georgia Transplant Foundation’s website at this link:
A “Go Fund Me” page is set up for contributions to help with the enormous costs related to the transplant, including medications, housing costs for the month we have to stay near the transplant center, and other unforeseeable costs for my care following the transplant. If you can, please be a part of my transplant journey by making a contribution at this link