Itchy! Shaky! Puffy!*

Transplant Day Sixteen
November 27, 2019

An endearing Physician’s Assistant, Melanie, listened carefully to my symptoms, complaints, concerns and pains, taking very seriously every snippet of information I gave her. She responded with a well thought out remedy for each of my concerns. She was thorough in explaining how we would address every problem and she did so with humor and compassion. Melanie was obviously highly trained and impeccably qualified to treat transplant patients. She had many years of experience and could explain every symptom and prescribe a plan to address it. Her encouragement that the unpleasantness would pass over time was a boost to my courage. Her gift to me was increased patience and a renewal of my hope.

At the end of our session, Melanie offered a summary of the visit, a very descriptive, professional and astute summary. “You’re just having a rough patch right now,” she said, “Itchy, shaky and puffy!”

All of a sudden, I knew her words would be the title of my next blog post. “Itchy, shaky and puffy!” Perfect! Simple descriptive words — not just sterile clinical jargon — but extremely real and true. And that’s what my family and friends want most to know. What are you really feeling?

The truth is that, from the transplant itself, I am recovering well, and now with very little pain. But the effects of my high-powered immunosuppressant medications are playing havoc on my body and all its systems.

Itchy — enough to keep me awake through the night.

Shaky — along with weakness makes it hard to walk and even feed myself.

Puffy — I can’t even describe the pressure in my legs that feels like a balloon about to burst. Two times their normal size is not an exaggeration!

There you have it — a very real, true and human description of how I am faring post transplant. It is pure grace to be able to counter the simple description of my ailments with the simple words of encouragement from the Gospel of Luke:

Are not five sparrows sold for two pennies? Yet not one of them is forgotten in God’s sight. But even the hairs of your head are all counted. Do not be afraid; you are of more value than many sparrows.

— Luke 12:6-7 New Revised Standard Version (NRSV)

When all is said and done, I am beginning to believe that I really will emerge from this transplant with a stronger faith and an everlasting hope, having learned how to trust God more fully and know in my heart of God’s healing mercies. Most of all, I want to get past this transplant with words of praise to God on my lips, like the Psalmist, declaring that my mourning has turned to dancing:

Hear, O Lord, and have mercy on me;
Lord, be my helper!”
You have turned for me my mourning into dancing;
You have put off my sackcloth and clothed me with gladness,
To the end that my glory may sing praise to You and not be silent.
O Lord my God, I will give thanks to You forever.

— From Psalm 30

* With thanks to Melanie.